I’m currently on a range of meds for my allergies and asthma. Since being on Xolair, my asthma and allergies are so well controlled that both my Respiratory Specialist and Immunology Consultant are happy to start reducing my meds gradually.
Has anyone reached this stage of their treatment? Although I’m excited, I’m slightly apprehensive.
They want to reduce the following:
- Flutiform: 2 puffs twice a day to once a day
- Loratadine: 4 times a day to gradually reduce to once a day
- Montelukast: stop
All other meds I’m taking will remain the same.
I guess my real question is whether anyone has experienced a reduction on several meds? It seems ambitious to me but I do receive great care and trust them with my health.
(I want to caveat this in the interest of safety- I’m not looking for any specific advice regarding this, just simply want to hear of other peoples experiences ☺️)
Thanks in advance!
Written by
MrsCMK
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Possibly not helpful as it's not quite the same but I had a couple of meds reduced/stopped a while back and I had to do one at a time as my body wasn't keen on the straight change to both - that's possibly partly just my body though and I didn't have the bonus of working xolair!
My only advice would be to keep monitoring symptoms, peak flow etc to help track how its going but hopefully they would all be suggesting that anyway.
And I'm really glad xolair is working so well for you!
Thanks for sharing this. I will certainly be taking one med at a time, my little lungs have done me proud until now so don’t want to undo all the hard work ☺️
that's such good news! I'm in a different situ but i have been advised to stop montelukast and change from fostair to relvar while i await my referral for biologics. I came off montelukast 5 days ago and actually feel a bit better so i would confidently say asthma symptoms have not been affected so far. Good luck with reducing. How are the biologics by the way? I'm excited about getting them but also apprenshive
Thanks for sharing your experience with stopping montelukast- this is the one I’m most apprehensive about stopping, before Xolair it was my wonder drug (I haven’t wheezed since the month I started it 3 years ago). I think I’ll only tinker with this once I’ve had a good response from reducing the others.
Biologics have been amazing for me. I feel super grateful that I’ve had such a great response after such a short period of time but also feel bad for this as very few severe asthmatics reach this point. I hope they work for you too! From what I’ve read, when they work for people, they really do make a difference. Fingers crossed for you
Glad to hear it's going well, how long have you been on Xolair? I've had three doses so far and not noticed any difference. Currently whacked up on steroids coping with the weather/pollen! I have another dose booked in a week's time when they assess things.
I’ve been on Xolair for 16 months but for reassurance, I didn’t feel any relief until after my 4th dose (the change was almost overnight). I remember feeling pretty horrific after my 3rd dose though.
Since being on Xolair, I have not needed prednisone as often and the last time I needed it, my doctor prescribed a 5 day burst and that was all I needed 😁😁😁.
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