Hope you’re all well and not struggling too much with all of the winter sickness that’s around atm!!
Just looking for a little advice/your experiences on how to cope with the wonderous side effects of long term high dose pred as it looks like I’m going to be on 40+mg for at least another month and then when it comes to weaning it’ll be a 1mg every x amount of days down to 25 to start with as every 5mg drop seems to be landing me in resus atm😒
Currently riding an emotional rollercoaster and mainly struggling with crying over nothing/silly things (both good and bad) like my cat not sticking about to be stroked🐈, a mug of hotchoc going cold before managing to finish it🍫, being so tired I drop my PFM when trying to get a reading whilst feeling bad or having to call my spec team for advice😂😅 and ‘snapping’ at my family when they ask if I’m ok or why I’m being so annoying and negative🙄 (not trying to be-just exhausted, in pain and can’t breathe🙈)
I know in reality I am going to be back in for another long admission on IVs/O2 soon enough as it’s the only thing that seems to provide any stability atm and already crashing despite getting out of hosp the other day🐍🐘🤦🏻♀️
Any tips/advice will be greatly appreciated!😊