Letter from asthma clinic : I was... - Asthma Community ...

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Letter from asthma clinic

8 Replies

I was feeling all positive that I thought I might be getting a solution to my severely allergic asthma Xolair was mentioned and I am now doubting the fact that I might not get on it, am I just being negative?

Thank you x

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8 Replies
EmmaF91 profile image
EmmaF91Community Ambassador

Hi

It’s basically saying that the nurse/registrar (assuming reg here) thinks you’re eligible for xolair but the consultant has to agree (so needs o see you), then he has to take it to panel to be approved (that’s if you’re at a specialist hosp)... if you’re not at a specialist hosp the MDT will be with a special hosp (most likely) for referral to them for the drug (unfortunately the process of getting a MAB can be a long one...)

But it’s not saying they don’t think you need it or aren’t eligible. Help that helps

Thank you for that it puts my mind at rest as I’m so desperate for something to help x

Mogget profile image
Mogget

This was the same process I went through before being approved for Xolair so don’t worry 😊 The last step was approval from the MDT (multi-disciplinary team) board meeting which my consultant took my case to.

in reply to Mogget

It just panicked me when the letter came through as I wasn’t expecting it then started reading it and worrying 🤦🏻‍♀️ thank you I am meeting the consultant on the 13th so hopefully will know then what’s going to happen in the future x

Mogget profile image
Mogget in reply to

I have everything crossed! X

in reply to Mogget

Thank you really appreciate it x

Margerita profile image
Margerita

Yep this is the same process I went through before I started Mepolizumab. It’s a long process with lots of boxes to be ticked before your case can go to MDT. My consultant was amazing and very thorough to make sure every test had been done prior to MDT. I’ve now been in it for a year and it’s all worth i feel fantastic. Keep positive 😊

in reply to Margerita

Thank you x

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