I know there are a lot out there struggling atm (or just starting to recover), and with the asthma usually comes the mood and feeling down. I thought it would be a good idea to share some positivity (esp after seeing this from a FB group... yes I am stealing it!)
So if you have something good you have done/had happen to you this summer, or something that made you happy/proud/feel good/positive please share it here! Holidays, family events, going out whatever has made you feel good this year!
Anything goes just show that asthma doesn’t have to hold you down or hold you back!
Share the love and hopefully you’ll help someone out there smile and see that they CAN get through their current issues.
Written by
EmmaF91
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2months attack free and next week I am fulfilling one of my life goals, to stay in a caravan! This is actually one of the more achievable ones. I’ve got “stroke a tiger” on there but I’m not to hopeful about that one. My cat is called Tiber, so I could achieve it if I claimed a typo on the original list🤫
This week, my daughter started senior school without me because I am in hospital. Despite struggling so much with school last year, she has done so well and seems to be happy with her new school. I was so worried because I wasn't there for her, but I am so proud of how well she's done. Even being away from me for a week (with daily visits) has been hard for her because she has autism and she's quite attached to me. But all the effort over the past year to build her resiliance has paid off. I am so proud of her, and her big brother, for doing so well this week. x
I’m sorry to hear you’re unwell but glad you’ve managed to teach your kids resilience and given them the strength cope despite how changed her world is atm! You must be a proud mumma and be proud of your job! You did awesome (even if lungs aren’t doing such a hot job atm)
Happy memories a family camping holiday in July with amazing weather. Two daughters getting brilliant GCSEs and A level results. Praise God.
Now life is changing so completely oldest two off to university one Tuesday and one Saturday this week. Things are going to be very quite. A new normality but a good normality.
- Autumn is coming and I like the season (plus I love clothes and I prefer the autumn fashions, and will soon get to wear my cowboy boots!)
-Holiday in November
-Giving myself a kick up the backside and quitting my job to freelance while I try something I like more alongside it. I was kind of drifting along but then decided I could make it work after discussing with various people, and I was sick of spending so much time doing stuff I didn't like. I will miss my colleagues massively and my company has been great with my dodgy lungs, but it's the whole industry that just isn't working for me anymore as it is, and I currently have no time or energy for the things I do want to do. It would be one thing if I had no choice but I am lucky and I do, so here goes! (My official last day is my 34th birthday - not planned, it was just 3 months from when I quit which is my notice period, but feels somehow significant).
Thanks! And yeeeee-ha! Not sure what my good season is now lol but I like it anyway (at least until the clocks go back and then it's too dark). My birthday in October is well-timed.
I love autumn, although sadly my lungs do not! 😂 I can’t wait to dig out the warm pjs and ugg boot slippers!
Good luck in your new venture xxx
LysistrataAdministratorCommunity Ambassador in reply to RD23
My lungs now just seem to dislike all weather except for about 10 mins in summer lol.
Thanks I am with you on the comfy PJs, though the transition period is difficult when I don't have enough wardrobe space for everything to be out at once. I do have a boot obsession though so like it when I can wear those again.
A walk up to a view point about 6 weeks ago. I struggle with any version of walking uphill. I am also really not good at realising that I could help my situation by using Ventolin occasionally. As asthma has crept up on me, I think for very many years, I got very used to how I was feeling and considered it normal, or that I was failing to keep fit, blaming myself for it. Thus if something isn’t quite right, not badly wrong, it often just doesn’t occur to me to use ventolin . Anyway, I wanted to go up to a view point. Not so far, perhaps a couple of miles each way, but half easy, half quite challenging, including clambering and climbing up rocks. My husband was horrified, he thought I might have an asthma attack. But it was fine. For once I planned ahead by taking Ventolin, and it did me well! It was only the last perhaps 200 meters back to the car when the breathlessness returned. It truly felt like a victory! I am not necessarily as useless at walking as I consider myself much of the time. Mind you the air temperature was also good, and of course it is in a much drier climate than here. I am still celebrating, sort of.
Congratulations, such an accomplishment for you! I hope you get to do so again in the future! (And yes I get what you mean by ‘forgetting’ that ventolin exists for smaller asthma issues 😅... also understand the not noticing part!)
That sounds like such a satisfying achievement. I long to do something similar myself but the fear of having an attack stops me going on adventurous walks. I too never think of using the ventolin. Glad to hear it helped.
Thank you, Emma! I felt that would be the last time I walked/clambered up that particular high hill. Unrelated to asthma, there is also the small issue of balance being less good than it used to be. So some bits felt a tad scary. It truly wouldn’t have done 5 years ago. We were the only ones up there with grey hair...........
This thing of not noticing, for me is compounded by a feeling that I mustn’t be such a wuzz. So between the two, Ventolin truly does not come easily. Given that my attitude has led me into trouble, I am working hard at doing better, helped along by a daughter who does notice, a doctor friend who no longer tries to be tactful, and instead tells me outright, and me taking note when people, some who are virtually unknown to me, comment with concern about my coughing/laboured breathing/ not looking well. Even if it truly hard to break old habits. I do wish that thing of how often you use ventolin wasn’t one of the cardinal signs of less control, as medical professionals seem to find it hard to understand that forme that is a non sign.
I was in the regional finals of Slimming World Woman of the year today! Was East Anglia division. Of 899 groups I was one of 49 finalists. I didn’t win but proud of making it that far even.
With the various repeated hydrocortisone tablets etc playing havoc with appetite I am still feeling pretty chuffed with keeping on top of this and for being voted my group’s inspirational woman of the year.
5 stone 12 gone and couldn’t be happier. My view is, I can’t always control my asthma/Fibromyalgia, but I can still have some control over the food that I eat. Not always easy by any means but yes Emma, I am proud of where I am now compared to when I started and to be fair, there is a very high possibility I actually wouldn’t be here to tell the tale if I hadn’t done something about it.
After I discovered my nut allergy was misdiagnosed two years ago, I have gradually put 2 stone on eating all the things I couldn’t! I’ve spent the best part of a year trying to lose it and at the end of June I got so fed up I joined Slimming World. In about 11 weeks I am 3 and a half lbs off losing a stone, so that’s 10% of my body fat nearly gone.
Clothes are fitting and feeling comfortable again and balancing it with all the bloomin asthma attacks, I feel quite chuffed!
Yep! Mine aren’t keen on changing weather either. I think I tend to best when I’m by the sea.
Me too! I’m also looking forward to thick black tight wearing weather!
LysistrataAdministratorCommunity Ambassador in reply to RD23
Ooh tights in general!! I have so many in different colours/patterns and love it when I can wear them. Especially since my legs are horribly bruised (not sure why since I've been off long term pred for a while now) so I prefer to cover them with something nice lol.
Mine are just ridiculously pale! I don’t tan, even Casper has more colour than me 😂
LysistrataAdministratorCommunity Ambassador in reply to RD23
Same! Plus an unattractive pattern of bruises to set off the glowing white :p. I think I magically attract furniture, and I'm always amazed by how most people seem to have normal-looking legs lol. I currently also have a nice set on my arm.
Mine are caused by the drawer at the end of my bed! Or as I go out into schools, by walking into tables! I also have, I think it’s called, ‘strawberry legs’ from shaving! My arms are ok, I just have scar tissue from being cannulated so much on my right arm which I’m convinced everyone can see, but realistically, I don’t think anyone stares at my veins that much 😂
LysistrataAdministratorCommunity Ambassador in reply to RD23
There's a vein in my left hand which has a lovely pattern - I suspect a nurse or dr who sees me out and about could tell I'm a frequent flyer, as I often get comments on it when they're about to go in for another one, and I have heard that healthcare professionals get into the habit of checking out veins on random people (I do the same with things related to my job, like statistics on ads, so can't blame them lol).
If I've just been in I'll have a bruise on the back of one or both hands from a cannula and sometimes a wrist one from the ABG - bet that pattern is *very* obvious to any medics or nurses who see it.
Our son got married in March, my husband took early retirement in May to always be with me ( enough said positive post) and we celebrated our Ruby (40 yrs) wedding in August. All great positives for us ❤
Congratulations on your anniversary and your son's wedding! Hope for many more happy years together for you and your husband and your son and his new spouse
Lovely idea! My partner proposed to me a couple of weeks ago which took me by complete surprise. He was acting very shifty beforehand and I actually thought it might be curtains for our relationship as he’d had enough of my rubbish health 😂
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I am with you on the comfy PJs, though the transition period is difficult when I don't have enough wardrobe space for everything to be out at once. I do have a boot obsession though so like it when I can wear those again.
What would you say to her?
1st appointment with the respiratory consultant 
Snap, crackle and pop
laryngospasm started in recent months
How would a rational person deal with this? What would be their thought process?
