Where to begin...
Just been discharged from A&E yet again after presenting with a severe attack, heading to L-T. Told in triage that I would be see by a doctor shortly and given nebs....PF 43% at the time(after nebbing myself half to death all day already) unable to talk properly (relying on Mum to do that for me) and walking into things getting to the assessment room.
Low BP, high HR, bouncy sats and reducing PF followed by passing out(and semi passing out)...thought that would raise red flags but nope🤷🏻♀️
Was finally seen by a doctor 2 hours later and given a lecture on panic attacks...pretty sure I can tell the difference between feeling anxious and having an asthma attack. Also anxiety doesn’t lower PF or sats and you have to feel anxious to have an anxiety attack🤷🏻♀️ but whatever!!😠Anyway after initial examination he decided to check PF (maybe finally getting somewhere!!) and then give an atro neb cause already had salb nebs at home so apparently didn’t need any more🤦🏻♀️ got PF up to a whopping 56%🎉🙄 and then immediately got told I was fine to go home...err what?!
Spent a little while explaining the situation (not even capable of using full sentences due to SoB but that didn’t highlight any issues either cause no wheeze🙄🙄) and why I couldn’t go home until I knew PF would hold up and he begrudgingly agreed to let me wait for a bit and recheck PF. 1 hour later and a nurse comes to check on me. PF back down to 46% and that lovely cough had returned 1hr post neb😅 dr comes in, says everything is great and can be discharged...no further treatment needed. He ummed and aahed about giving steroids but I had already had my dose of pred that morning so no need as I quote ‘it is still Sunday’ (this was at 23:45) and I had had my Sunday pred🤷🏻♀️ what about hydro etc??
Was told this is A&E...there’s nothing much more we can do (dude, you literally gave one neb treatment!!!) etc etc etc...there’s only so much we can do to help, only so much your GP can do to help, only so much resp here can do to help and only so much the spec hosp can do to help when you see them. The rest is on you...what does that even mean??🤷🏻♀️🤔
Anyway, now back at home, nebbing as I write this. Been told to go back to the GP tomorrow to ‘stock up on reliever meds’ and left feeling very frustrated, confused, upset and lost knowing this will probably happen all over again tomorrow(and every night after that unless readmitted)when I hit my home neb limit and start to really struggle again. When will they admit defeat and give me something more to actually maintain responses and try to fix the issue rather than masking it with salb/atro!?!?! Ugh.
Will be calling my RN team first thing tomorrow for advice on the situation as I know it isn’t right or ok but there is nothing more I can do atm other than hope this neb props up PF and calms symptoms enough for me to catch some sleep😴🤞🏻and if not...head back into hosp and hope that I am ‘bad enough’ to be taken a little more seriously this time😩
Any advice or anything would be greatly appreciated...am I being unreasonable to be wanting treatment that will maintain and maybe keep me out of the hospital for more than a couple days?...I only go to hosp when I can no longer treat myself with what I’ve got so surely that is a sign that something more needs to be done?? There is literally no point in me being there if all they are gonna treat with is nebs as that can be done at home(just not safely-but being sent home at this level isn’t exactly safe either so I’m at a loss)🤦🏻♀️🤷🏻♀️
Anyways...rant over😳😅thank you for reading if you got this far😂🤦🏻♀️🙈