I have silent Brittle asthma that has been fairly stable for around 9 years but been extremely unstable since Dec last year. I have posted before and had some fab support, but this has been a weird and disconcerting shift .....
I finally got to see respiratory Consultant at my local hospital, but gutted when she sat there with a blank piece of paper and no reference to all the letters, notes or test results my GP had sent.
She said the spirometry she had booked with my appointment had been cancelled for some reason (internally) - even though she was running an hour late and I could easily have done them in that time!
She barely listened to me and asked hardly any questions before saying she didn’t want me to have Magnesium sulphate any more.
I have had to have IV Magnesium sulphate every couple of weeks or so all year as nothing else has held my peak flow up for anything longer than a couple of hours or so! My peak flow is normally around 460 but it dives to around 100 by the end of the 2 weeks. She also said she doesn’t like patients saying what works for them?!!!
I asked her what I should do instead of having the Magnesium sulphate and she calmly said I just had to wait for her to read the letters etc and she will get back to me at some point once she has sought opinions of other specialists! Surely she should have done that BEFORE seeing me so we could have formulated a plan together?! I am left with no time span or suggestions!
She then said the killer statement “and I don’t want you going to A&E” (I have actually only been twice - one of those was by ambulance called for by my GP in Feb when I went to see him for advice!) other Magnesium sulphates have been arranged by my surgery asthma nurse at local ambulatory centre but that option is no longer available.
I can’t believe it is right for a clinician to say an asthmatic shouldn’t go to A&E? My peak flow is down at 70 at the moment and I am shattered with the effort of breathing.
Only other appointment I have in the mix is Immunology appt after referral by my GP to main teaching centre finally come through...... for September!
I feel lost as to where to turn 😔