Hi all
I am a brittle and severe asthmatic with a history of circa 10-14 admissions a year and multiple ICU admissions under my belt. Luckily, I’m relatively well between these flairs and am able to work.
My local hospital is great and the consultants and respiratory ward nurses and drs. work hard for me.
I respond well to Aminophylline IV (alongside hydrocortisone, magnesium, heliox and ketamine) on admission. I take theophylline (which my body struggles to absorb, nebs, antihistamines, prednisolone etc.) at home.
I now know my symptoms well enough to know 2-5 days before I have a big attack. I up my steroids at home and increase nebulisers myself. The problem I have is the next bit... I have to wait at home to get worse, bad enough for A&E and emergency treatment. What to do? Ideally I’d check myself in for a day or two on Aminophylline and avoid a two week admission. Saving major drama for my family and work... This just doesn’t seem to be an option.
Does anyone have any thoughts about some kind of middle ground treatment? What else can be done between ‘well’ and resus!?