First time posting and don't really know where to start.
Was diagnosed with asthma in the spring/summer this year after never suffering with my chest before. Originally they thought it was seasonal as also had a bad bout of hayfever (never had this before either). Had quite a few weeks of work as struggled to get symptoms under control. Different inhalers and numerous courses of steroids I had a fairly stable September and October.
Once the damp/cold weather started I had another flare up. I currently take fostair 200, spiriva respimat, montelukast and Salbutamol when needed. I also use a spacer. As there is nothing more they can do to manage it in the community they have done an urgent referral to respiratory consultant and my appointment is for July next year! I have been added onto cancellation list and there is no where close by that can do anything sooner.
I am currently off sick again and have been for the last 6 weeks. I've had a chest infection so had antibiotics and steroids for that. I stupidly went back to work before I was fully better and ended up being signed off again. So now have had 2 lots of sickness instead of 1. My colleagues have been great although we work shifts so me being off does put pressure on them as we are a small team. My line manager can no longer hide her disappointment in her voice when speaking to me and I have asked for a referral to occupational health which she has done.
I started another course of steroids on Monday (under GPs instruction) as very wheezy, tight chested, SOB - you know the drill. This is 4th lot of steroids in 2 months. Anyway last night I had to go to A&E for the first time as I couldn't breathe ( very frightening so hats off to you all who have lived with this for years!). Very positive experience seen quickly, nebulized, chest x-ray and bloods. My x-ray showed infection but luckily bloods weren't too bad and the nebulizer had improved things a lot so didn't have to stay in yipee! Have been back to GP who has signed me off until after new year - you can imagine how happy my line manager was about this. Which I get I have just caused a massive headache for them to try and cover all my shifts (wasn't at work on Xmas day though so that's something).
I feel like a stuck record of telling people the same thing. My husband is really good and does so much but is not the most sympathetic (actually dropped me of at A&E and left me there until his mum told him off and came to watch the kids). I have had to ask for help with things when it's been bad but have continued to do the school run even when very symptomatic and feel as they help hasn't been offered I don't want to ask. I've carried on as normal minus being at work, sorted Christmas, organised all the kids school things going onnthos month, continued to do the housework and washing etc as best I can.
Just having a bit of an oh woe is me moment and feeling sorry for myself. Didn't know if anyone has any words of wisdom for helping friends and family understand a bit better without sounding like I'm moaning (Which I know is ironic as that's exactly what I'm doing now).
If you got this far well done, thanks for reading and sorry for the massive post.