Worried: Hi for first time since my... - Asthma Community ...

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Worried

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Hi for first time since my diagnosis I was admitted to hospital with breathing difficulty it has scared me to death. I was discharged on the Sunday..letter said hyperinflated lung scarred stiff...and crying daily. Nothing has really been explained to me. And afraid I will have another attack

40 Replies
EmmaF91 profile image
EmmaF91Community Ambassador

Hi Emily - sorry to hear you’ve been so worried!

My best advice would be to ring the asthma UK helpline. You’ll speak to an experienced asthma nurse who should be able to answer any question you have and talk you through what you need to do.

Post admission you’re meant to see your GP within 2 working days to see how you’re doing. I’m assuming you have an asthma plan but if not your GP can help fill one out for you!

The tears are most likely your body/brain adapting to the situation, plus the prednisoline I’m guessing you’re on! Don’t worry about them just let them out!

Here’s the asthma UK phone number; 0300 222 5800. Their website is also really useful in explaining things! (asthma.org.uk/advice/)

And where you can download/print off a plan; asthma.org.uk/globalassets/...

I hope that helps you! Hope you feel better soon x

in reply to EmmaF91

Thank you for your response. Saw my gp who rushed me gave me more antibiotics didn't really have time to speak to me. Going back Tuesday to update my plan.

And I will phone helpline as I feel really worried

in reply to

Smart. Ask them and your doctor about it all, including the hyper inflation. We can make general comments here but it’s your doctor and nurse who have access to YOUR records and know what it means FOR YOU.

Put 100 asthmatics in a room, and you have 100 markedly different patients. Find out from those who have your records what it means FOR YOU.

Your letter about when you go back to work is important. This is your first hospitalization, so here’s the deal. You’re not fully recovered when they send you home. You still need to recuperate at home and take it easy, or you could end up back in hospital again.

So rest and enjoy your time off.

in reply to

I know you are right will try to stop stressing what will be will be. I do need to look after myself

in reply to

Just keep reminding yourself that you have a plan to sort it out. Put your feet up and watch a favorite movie. Keep your mind occupied.

If you’d had the flu, you wouldn’t be surprised that you need to take it easy. I’m sure that first hospitalization was a shock, but actually I see it as a relief. I know I need to be there, and I know I’m safe. In fact I’m in hospital now for asthma, probably going home tomorrow.

in reply to

Oh are you...I hope all is going well. And you are home tomorrow. When did you go in?

in reply to

Thursday.

in reply to

How are you doing now...are you going home tomorrow

Can anyone tell me how asthma attack can cause hyperinflated lung anyone else experience this

EmmaF91 profile image
EmmaF91Community Ambassador in reply to

It’s basically what shows on X-ray when you can get air in but not back out again (like in asthma and COPD). Air gets ‘trapped’ in your lungs until they relax to a ‘normal’ breathing pattern. This trapped air causes your lungs to overinflate as air comes in but not out. In and of itself it’s not anything to really be worried about as it’s a sign on an issue not a cause.

It’s normally more prevalent in COPD as they live with lungs which don’t like to breath out whereas asthmatics only have it during attacks if that makes sense 😅

in reply to EmmaF91

Thank you is there anything I can do about it..you are being far more helpful than my Dr

EmmaF91 profile image
EmmaF91Community Ambassador in reply to

If you’re ‘just’ asthmatic it will have resolved by itself as your asthma calmed down (before you left the hosp). To stop it happening is difficult cause it only happens when you’re struggling to breathe. Your best thing to do during attacks is to keep calm and remember to breathe out not just in. It feels ‘wrong’ but that’s what asthmatics struggle with / the out breath! It will take a long time to exhale but it’ll stop you hyperinflating.

GPs often seem to struggle explaining thing but usually that’s due to time restraints - try getting an asthma nurse appt - usually appts last a little longer and all they care about is the asthma 😅

Mind you on here we have lots of people with lots of different experiences and different levels of asthma... normally someone’s been through something similar so you get a lot of support from people who understand

in reply to EmmaF91

I thought it might be due to something else I did try to appointment but surgery said January 2019 and couldn't wait that long hence GP appointment. Will try to discuss this next Tuesday with gp

Wheezycat profile image
Wheezycat in reply to

Our daughter got the same when pretty young. In asthma is is normal to struggle breathing out rather than in, though as EmmaP91 says it is only there when not well controlled, or during an episode. It was picked up with our daughter and referred to as a barrell chest, that is you could see it on the outside. We had noticed that she looked ‘fat’ in that area, but not enough to query it. With medication it went and has never recurred. It just shows you have another symptom of breathing issues, which will go once your medication is at the right level for you. I remember when I first got my diagnosis I used to struggle with breathing out when walking down the road, even if there was no hill or anything. Now, when I am OK, I don’t have that.

EmmaF91 profile image
EmmaF91Community Ambassador in reply to Wheezycat

The barrel chest will only occur if you’re short of breath long term as it develops over time, and as wheezycat says on the right meds it will disappear!

Wheezycat profile image
Wheezycat in reply to EmmaF91

Yes, I think our daughter had had symptoms for quite a while before I took her to the doctor. She used to cough at night which I put down to colds. She would have been around 2-3 -4, and I didn’t take her to a doctor as they seemed to pass out liquid antibiotics like confetti in those days, and I preferred her to develop her own immutity. At age 5 it became obvious she had breathing issues, so then I did act. But it took to about age 6 and seeing a specialist before the barrell chest was identified. Our daughter had plenty of time for it to come along! By the way, she was on huge theophylline capsules for quite some time to control her night time asthma, and it worked a treat for a few years. How things have changed!

in reply to Wheezycat

Hi I am so glad your daughter is doing well ...I can't imagine what a child goes through...again thank you.

in reply to EmmaF91

Thank you

in reply to Wheezycat

Thank you for your response I have feel do low since my attack and lost scared keep coughing up mucus then panicking so thank you

Wheezycat profile image
Wheezycat in reply to

I, too, suddenly ended up in hospital about two years ago now, and spent four days there. Yes, it scared me, too, and now I really want for that not to happen again, so I take a lot of care, like scarf over nose in winter, not mess with medication and such.

Our daughter is now 35. She still has asthma, but now she cares for it herself, and she is lucky, it doesn’t seem to be a major problem these days.

in reply to Wheezycat

Sound advise

johnsmith profile image
johnsmith

Read some of the other posts. I have been told that in some GP surgeries patients can self refer to physiotherapy. Other than that suggest see an Alexander Teacher for help with muscle control issues.

Thank you...Will look into that Monday.

robert1957 profile image
robert1957

emily61these are the same symptoms that I was getting please make sure you take your meds and get over this episode also research magnesium deficiencys and symptoms of good luck

in reply to robert1957

Thank you

Prestart55 profile image
Prestart55 in reply to robert1957

This is interesting where is the research on this?

robert1957 profile image
robert1957 in reply to Prestart55

hello prestart55 its well documented that due to soil depletion there is a lot less magnesium in our food. one of the many symptoms off magnesium deficiency is breathing problems raised blood pressure to name a few adult males need about400mg per day adult females about 370 mg not every one is getting the required amount I am. I hope you are too good luck

Hi 7th day of antibiotics mucus was clear now green drinking fluids. Still feel drained worried as just started new job...hoped I would be feeling better by now...

Prestart55 profile image
Prestart55

Go back to gp or walk in centre

Am trying to get appointment so I don't have to wait around awaiting call back

Prestart55 profile image
Prestart55 in reply to

Good 😁

Get to your regular doctor ASAP and get a full explanation. Your lungs might have been temporarily stiff from asthma related muscle spasms. That I think would show that you needed to be hospitalized.

Many people with pretty mild asthma have a flare bad enough to put you in the hospital. That’s why even very mild asthma is treated.

I think you’re going to find that this isn’t as bad as you think, but how you feel right now emotionally about it can be solved. You don’t have to feel this way. Also, YOU understanding your asthma is vital to your physical and mental health.

in reply to

Thank you I am feeling pretty emotional and work just phoned to see how I was and when I was back...sick note not up until next Wednesday????

Prestart55 profile image
Prestart55 in reply to

It's none of works business you have a sick note and can get another sock note they shouldn't be asking when you are back.

in reply to Prestart55

I know but was worried because just started 5 days into job before attack...nothing abnormal detected on visit...so will wait for my gp appointment Tuesday

Thank God

Back up.hospital infection not clearing mucus green thick asking for different anti biotics

su-mo profile image
su-mo

My asthma started 48 years ago following an Anaphylaxis Near Death Episode. Although never admitted to hospital (different times then) I was chronic asthmatic with many attacks (poorly controlled) usually brought on by either A) an allergic reaction or B) Chest infection. Did not improve until I adopted a strict diet and took yoga breathing classes. Still got attacks when acquiring chest infection. Breathing improved 9 years ago when I started taking Proteolytic Enzyme Capsules but did not stop chest infections until I added Probiotic Capsules High Strength 4 years ago. Now 74 I can run, cycle,& play 18 holes of golf without any medication. Very healthy diet still trying to limit my sugar intake. Hope this might give you hope!

in reply to su-mo

Good morning

Thank you for that. What does probiotic capsules do exactly. Happy to research, try anything that will help me get back on top....I am having course of IV antibiotics..hopefully will see respiratory nurse before discharge as I do need lung function test..just so tired but determined to get on top of this.

su-mo profile image
su-mo

Probiotics will help to replace the friendly bacteria in your gut microbiome which may have been adversely affected by antibiotics. Probiotics should best be taken at a different time to your antibiotics see research. Robert Redfern good health website is useful start.

Thank you so much

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