Xolair Update

[Lizzie1956]

Well yesterday I had my 6th shot of Xolair.

Got to be honest, it’s no fun every month travelling an hour each way, then having an injection in each limb.

BUT my goodness, I honestly (touches lots of wood) think it’s working!!!

No real side effects that I can see or feel, in fact I feel (apart from a cold) the best I’ve felt in months!!

Yay!!!!!!!!! Long may it continue.

Fingers crossed 🤞🏻🤞🏻🤞🏻🤞🏻🤞🏻 🤞🏻

[Shellc]

Very pleased for you, I have tried Xolair and Mepolizumab and no good for me, I travel into London from Surrey but definitely worth it if works x

[Lizzie1956 in reply to Shellc]

Oh that’s a bummer isn’t it!! What next for you?!

Liz x

[Shellc]

Maybe Reslizumab which is given intravenously but works in the same way

[Lizzie1956 in reply to Shellc]

That sounds harsh 🙈

Liz x

[Mogget]

That's fantastic!! May it continue! I'm being considered for Xolair so it's nice to see it seems to be working for you.

[Lizzie1956 in reply to Mogget]

Good luck. Hope they take you for it.

Liz x

[paula66]

Glad it's working I been on it for 2 years stopped a lot of the chest infections I was getting..my only issue is I'm ill for three days after but I weigh it up and they're worth it x

[Lizzie1956 in reply to paula66]

How are you ill??

Liz x

[paula66 in reply to Lizzie1956]

I get all the reactions known to this ..I can be sick I feel like I got the flu I get a rash on my face ..some months better than others bit always get a,reaction last for 48 hours x

[Lizzie1956 in reply to paula66]

😱 No!!!! Oh that sounds grim!!!

Well, touch wood I don’t get anything.

Liz x

[paula66 in reply to Lizzie1956]

Fingers crossed you won't then cx

[Pipsqueak77]

Hi Lizzie

So pleased that the injections are working and you feel good!!

😜😊

Take care

Pipsqueak

[Margerita]

That’s fabulous I’m really pleased for you. I’ve just had my first one two weeks ago. When did you start feeling the benefits? I really hope it works for you I know you ha e to arrange your life around it but I don’t care if it works 😊

[Lizzie1956 in reply to Margerita]

I think it took about 3 months for me to feel a difference. But some people see a difference sooner.

I hope it works for you. When it works it seems to be a wonder drug!!

Liz. X

[Js706]

I’ve been on xolair 4 months now 😁 it’s not reduced my admissions massively but oh my god has it helped day to day!

I’ve gone from only being able to walk a couple of hundred metres before getting symptoms to returning to full time placement in hospital! I absolutely love the stuff!

[Lizzie1956 in reply to Js706]

Brilliant!!

Liz x