Ugh so I’d just managed to clear one virus (+ pleurisy) that I was in with 2.5 weeks ago and already seem to have picked up another one 🙄
That combined with the cold, damp weather, our neighbours having fireworks earlier in the week and Diwali celebrations on tonight mean I have one unhappy chest 😫
Set up in bed using salbutamol regularly and although my peak flow keeps dipping into red I’m not at admission yet as I can get it back into yellow with inhalers.
Just so frustrating as I just restarted my course a few days ago and have my xolair review on Monday 😫 desperate not to end up in before then as it has made a massive difference overall and a 4th admission during the trial will make it seem less helpful! (Even though that’s down from 6 from any other 4 month period in the year!!)
Rant over 😂
that's my kind of thing! A lot of the areas I'm interested in don't have much of an evidence base at the moment so its a case of going "hmmm might work, lets try!"
I’m quite interested in clinical genetics as a specialty - which has a lot of conditions like that in 
Nooo 😫
Stay well and stay out of hospital if you can (tho of course head in when you need too 😞)
They should consider your opinion about the xolair - when I was on it they were happy cause I said I was better then I was previously (despite needing hydrocortisone for 2-4 days about week 3/4 after each injection). Mine only stopped with the hypersensitive reaction so 🤞🏻 they approach you the same way!
Stay positive and stay out if you can... hopefully once the fireworks are out of the way things will start to calm down a little for you and you’ll be able to get over the cold without needing admission. Thinking of you x
That’s good to hear! I did most of the “assessment” with the asthma nurse last week so hopefully they’ll just use the numbers from that 😂 but I am prepared with many graphs showing a benefit just in case haha
I’m determined to at least get in to placement tomorrow as I have a mini test for the specialty I’ve been on this week - and having finally gotten them to stop saying it’s the stress of the course causing everything I don’t want to start missing assessments and have them start that up again 😂 (I know stress doesn’t help asthma but I have far more important triggers they can treat before they get onto that!)
More than anything this has made me
realise just how bad my daily symptoms were! I still get fairly regular night symptoms but they’re not awful and often don’t bother with inhaler. But I’m already on my third wake up of the good old witching hours and they’re bad enough to make me bother to sit up and find my spacer etc - it’s amazing what your body can get used to when it happens regularly!
How are you doing?
Without wanting to jinx it, I’m good thanks 🤫🤫🤫
I have a job (🎉🥳), so just need to find a place to live so I can start work 😅. Reduced my pred to 20 yesterday, but feeling it today... had hoped that cause I was A-OK on the other drops that’s I’d successfully get to 10 no problemo but 😬😒. Been asymptomatic (mostly) since we last chatted so feeling really positive about the mepo, however not sure if I’ll be able to cope with the aches and pains if they don’t let up 🤕😒.
Yes it is amazing how quickly you get used to issues/not issues. I struggle when I drop suddenly, but slow declines are so ignorable and forgettable! When I’m ill, I forget what I’m like when I’m well, when I’m well o forget what I’m like when I’m sick 😅. You can cope with it, then when you get through it you wonder how you did it, til the next time 😂
On xolair the only thing my team seemed to care about is whether or not I felt the benefit... now I’ve switched I wish I hadn’t have put up with the issues I had. They know the biologicals aren’t a cure, so you’re still going to have issues 😒. (But go blind them with your graphs and charts you geek 🤓😝😂)
Argh - I hate it when unis say it’s the stress of the course... I had to fight them all the way up to graduation, then after I graduated I got even worse so... the only ‘stress’ that triggers my asthma acutely is exams and that was controlled by extra pred 😅.
I hope you got to placement ok today (and that your ‘special senses’ rotation is good 😉). Feel better soon x
Wooooo! On all the good things! Hope the side effects let up! I think a lot of people say they do?
The nurses were big fans of my graphs and got quite excited 😂 they also show a really obvious benefit! (Partly because I know how to pick stats to say what I want 😜)
I think I might actually be going onto aminophylline after all? After checking peak flow. As they’ve just arrived with a machine to put it through! Also the pred is back up to 50 😡
Had a bit of drama on the transfer between hospitals though. They had to blue light me because of my heart rate so we were whizzing round a corner and my trolley detached from the lock 😱😱 so I went flying down the ambulance into the side! Thankfully I just hit the side so only have a sore leg - otherwise I’d probably have a broken foot 😂 I swear I seem to attract clinical incidents!
Well done on the job Emma woop! (Said that further down but this forum is weird so you maybe haven't seen it). Hope the search for a place to live is going ok.
Came up to this bit to say that but also to say glad it's not just me who forgets what it's like to be bad when I'm not and vice versa. I always convince myself I'm making it up and then also feel like I'll never get back to normal when bad.
Hope the mepo pains settle! Sounds promising though.
Thank you 😊. About to scroll through the messages that I’ve missed 😜.