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So many bugs!

a year ago•76 Replies

Ugh so I’d just managed to clear one virus (+ pleurisy) that I was in with 2.5 weeks ago and already seem to have picked up another one 🙄

That combined with the cold, damp weather, our neighbours having fireworks earlier in the week and Diwali celebrations on tonight mean I have one unhappy chest 😫

Set up in bed using salbutamol regularly and although my peak flow keeps dipping into red I’m not at admission yet as I can get it back into yellow with inhalers.

Just so frustrating as I just restarted my course a few days ago and have my xolair review on Monday 😫 desperate not to end up in before then as it has made a massive difference overall and a 4th admission during the trial will make it seem less helpful! (Even though that’s down from 6 from any other 4 month period in the year!!)

Rant over 😂

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76 Replies

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in reply to EmmaF91

a year ago

That’s good to hear! I did most of the “assessment” with the asthma nurse last week so hopefully they’ll just use the numbers from that 😂 but I am prepared with many graphs showing a benefit just in case haha

I’m determined to at least get in to placement tomorrow as I have a mini test for the specialty I’ve been on this week - and having finally gotten them to stop saying it’s the stress of the course causing everything I don’t want to start missing assessments and have them start that up again 😂 (I know stress doesn’t help asthma but I have far more important triggers they can treat before they get onto that!)

More than anything this has made me

realise just how bad my daily symptoms were! I still get fairly regular night symptoms but they’re not awful and often don’t bother with inhaler. But I’m already on my third wake up of the good old witching hours and they’re bad enough to make me bother to sit up and find my spacer etc - it’s amazing what your body can get used to when it happens regularly!

How are you doing?

1 like

in reply to Js706

a year ago

Without wanting to jinx it, I’m good thanks 🤫🤫🤫

I have a job (🎉🥳), so just need to find a place to live so I can start work 😅. Reduced my pred to 20 yesterday, but feeling it today... had hoped that cause I was A-OK on the other drops that’s I’d successfully get to 10 no problemo but 😬😒. Been asymptomatic (mostly) since we last chatted so feeling really positive about the mepo, however not sure if I’ll be able to cope with the aches and pains if they don’t let up 🤕😒.

Yes it is amazing how quickly you get used to issues/not issues. I struggle when I drop suddenly, but slow declines are so ignorable and forgettable! When I’m ill, I forget what I’m like when I’m well, when I’m well o forget what I’m like when I’m sick 😅. You can cope with it, then when you get through it you wonder how you did it, til the next time 😂

On xolair the only thing my team seemed to care about is whether or not I felt the benefit... now I’ve switched I wish I hadn’t have put up with the issues I had. They know the biologicals aren’t a cure, so you’re still going to have issues 😒. (But go blind them with your graphs and charts you geek 🤓😝😂)

Argh - I hate it when unis say it’s the stress of the course... I had to fight them all the way up to graduation, then after I graduated I got even worse so... the only ‘stress’ that triggers my asthma acutely is exams and that was controlled by extra pred 😅.

I hope you got to placement ok today (and that your ‘special senses’ rotation is good 😉). Feel better soon x

2 likes

in reply to EmmaF91

a year ago

Wooooo! On all the good things! Hope the side effects let up! I think a lot of people say they do?

The nurses were big fans of my graphs and got quite excited 😂 they also show a really obvious benefit! (Partly because I know how to pick stats to say what I want 😜)

I think I might actually be going onto aminophylline after all? After checking peak flow. As they’ve just arrived with a machine to put it through! Also the pred is back up to 50 😡

Had a bit of drama on the transfer between hospitals though. They had to blue light me because of my heart rate so we were whizzing round a corner and my trolley detached from the lock 😱😱 so I went flying down the ambulance into the side! Thankfully I just hit the side so only have a sore leg - otherwise I’d probably have a broken foot 😂 I swear I seem to attract clinical incidents!

in reply to Js706

a year ago

D'oh I did not connect those things but it makes sense! I hope they come back soon and give you something you can have...

Any aliens or weird spooky stuff so far lol? Sounds good, nice people always helps!

I'm in limbo - lungs every day so so but at my appt a couple of weeks ago the asthma nurse agreed the current situation isn't ideal and said she would speak to cons about maybe doing tests to see if anything can be done. Then she discovered that during my admission I managed to get some eosinophils, enough for mepo - which is just weird given I never normally hsve them and had got used to being non-eosinophilic! She was going to speak to cons last week but said to prod her so emailed this week but heard nothing. Now convinced it will all come to nothing (wary based on previous experience, less with this lot than others but still).

My lungs are so bloody weird! You know you're a freak when the tertiary ppl think so lol.

in reply to Js706

a year ago

Thanks! Yep I am kind of sceptical it would work tbh given the clinical trial results and the fact that I have so many admissions with normal ones. I'm still trying to get the team out of the mindset of thinking it's less bad and won't need hosp if I have normal eos - it's really not in my case! I'd still give it a go if they offer though - worth a try and might help the everyday, you never know! I think my lungs are taking the piss as it's dead on 0.3 - have they read the criteria? Stressing over whether the idiot dr claiming my admission in March was entirely dysfunctional breathing, despite treating me for asthma, will affect anything. Pretty sure I have enough without that ie admissions, but they still use pred as a marker for a severe attack and I often don't get it because it doesn't help me, not because it didn't qualify as a proper attack!

Tbh I would settle for them just doing something and not leaving me to it! I hate the waiting but am very unassertive in this situation.

Oops sorry to ramble when you're in and have been banged about! I hope you have some good snacks and not just rubber cheese lol.

in reply to Js706

a year ago

Wow - that was a lot to catch up on... I feel like I’m late to the party 🥳😅!

Urgh - why do docs tell you you have a dysfunctional breathing pattern when you’re having an attack - well derrr, I can’t breathe so of course my breathing a dodgy 🙄! Glad you pointed out the issue and got the ‘good’ drugs Jess... I hope you’re in less pain now (and in a better breathing situation 😜).

One of the things I’m glad of about my asthma is that I have both eosinophilic and atopic asthma so don’t have the issue of a fight when I’m in (plus I wheeze so 💁‍♀️😂). It must be so annoying and frustrating if you’re fighting with the docs about this each time, combined with not getting the option for a biological - if you hit the level Lysistrata then go for it... maybe it will help calm things down a incy little bit👌😅, or maybe I’ll do nothing but if they approve it, it’s worth a try!

I hate work when it’s what you have to do but have no enjoyment from... I procrastinate for as long as possible then I stress cause it’s near a deadline - one day I’ll just accept it and do it ASAP 😅. I’m dreading having to do my tax/accounts this year 😬😰.

Well if doctor-ing doesn’t work out for you Jess, that approach (makes sense but little-no evidence) is basically osteopathy 😉.

Enjoy your internet surfing/WiFi usage Jess (I’m still upset that my new local doesn’t have free WiFi 🥺😢😂)

2 likes

in reply to EmmaF91

a year ago

I know! It always seems rather obvious to me - generally I find staff who also have asthma are far more aware! (or the resp physios) and will say "yes you are in the dysfunctional pattern" but that's what we expect at the moment in the acute phase! Its when it sneaks into everyday life that its an issue - which is what the physios have cleared me of multiple times!

Still awaiting good stuff, but its written up regularly so will get it on the next drug round - probably could ask for it now but I'd rather wait and not be stuck waiting when I want to sleep!

I seem to have mysteriously started producing a wheeze now! And I'm getting better at going in before my entire chest goes quiet so they're noticing it more because they can tell the difference between the tops and bases of my lungs.

Haha excellent that's my kind of thing! A lot of the areas I'm interested in don't have much of an evidence base at the moment so its a case of going "hmmm might work, lets try!"

Boooooo on the lack of wifi! I'm glad its a uni hospital because otherwise its pretty expensive I think

2 likes

in reply to EmmaF91

a year ago

That's my logic haha! Finally got them to at least write up some PRN paracetamol so I can have that in between to tide me over.

Exactly! Makes sense to give it a go and if there's one thing this asthma journey has taught me, its that ruling things out is actually just as useful as a positive result!

They took the levels earlier but are actually going to try me off it tonight (to be honest I think I'd have been fine with more back to back nebs and a magic mag bag so I'm up for trying it!). I find even though it doesn't necessarily push my levels up much being on the infusion still tends to help a bit at low rates as I guess its a bit more continuous than whatever my weird metabolism does to the tablets!!

Haha thanks I've got the joys of ENT next week so I might be running away from sickly people slightly more!

1 like

in reply to EmmaF91

a year ago

Ugh I wish I could produce the magic wheeze! I go from nothing to quiet in patches to very quiet. Can be quiet in patches when Indon't think I am that bad and being told I'm not...so confusing. I have also had the multiple trips to physio and now just refuse on the basis that the last one told me it wasn't really doing much for the main issue!

I tend to be frustrated when under treated but if they do go in with lots then my brain thinks they are overdoing it! I think my former cons is living in my head ugh.

Glad you have something more for this now Jess. Hope you manage off the amino overnight.

Emma job is usually good but there are some tasks lol...Brain was not up to the trickier/more interesting aspects of this slide deck today so maybe just as well it was just refs..

1 like

in reply to Lysistrata

a year ago

Yeah I now just go in with "I know I don't always have a normal breathing pattern in attacks, physio told me to expect that" and that I've seen them multiple times, they're happy and have discharged me! Tends to keep them happy. I think it now helps that I do fully admit I had an issue with dysfunctional breathing day to day a couple of years back when everything first kicked off, because I didn't really know how to cope with the attacks (i.e. exactly the reason asthmatics develop it!)

Yeah its hard to get the treatment exactly right. And I suppose if they had only gone in with the mag and it hadn't worked they'd have been dealing with me in the witching hour again - which I fully understand why they don't want that in any asthmatic but particularly with me! I think that's quite often why I end up on it now when its starting to get late and I'm borderline.

Glad the job is normally good! It certainly sounds pretty interesting. And glad that you at least had some tasks that required a bit less focus when you were feeling a bit spaced!

2 likes

in reply to Js706

a year ago

Yes I deal with the dysfunctional breathing aspect on my summary - I don't get it too often in A&E, more from medics, but once had a really annoying 'asthma = wheeze' resp cons who screwed me over on the discharge summary with it after pretending he believed it was asthma to my face. He also told me he was supporte in this by the clerking of the A&E reg who was truly awful (not only no wheeze but using predicted PF despite being told best and trying to send me home when I could barely move!) Had another resp cons a couple of years ago (it's always the resp ones I find who come up with this) who asked me some very leading questions clearly trying to get me to admit to it and despite me answering them all (and truthfully) in a way that pointed to asthma, still did a discharge saying severe acute asthma and dysfunctional breathing, after chucking me out way too soon. His resp cons colleague who I saw initially had definitely said asthma and I'd be there for a few days.

Yep it makes sense to get on top early - and can see they might be twitchy with you more so than usual!

I do like my job generally - is a bit niche lol. Currently I have stuff about 5 rare diseases on the go - it's interesting but frequently confusing because they're all vaguely similar, and I often have 'if it's Tuesday this must be [insert nasty neuro disorder] here...nah wait that was this morning'.

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in reply to Lysistrata

a year ago

See from my POV that’s really odd, cause I’ve only been diagnosed with BD once and that was RBH when I ‘didn’t have asthma’. To be fair I was completely asymptomatic at the time, but had been very bad 2 weeks prior which I think is where I ‘picked it up’. I knew something was off cause my sats were all over the place since being discharged - I’m normally a steady 98 but they swung 93-99 constantly - but otherwise I felt fine just like I was ‘recovering’ from the hospitalisation.

I saw physio once after that diagnosis (when I was very bad, about 1 hr before RBH admitted me) and once after ‘severe asthma’ diagnosis when after explaining to the physio the situation I was discharged (cause I was doing ‘all the right things’ so she couldn’t really help me further 😂). Never had it diagnosed at my local tho 🤨. Another thing for me to be thankful for I think 😅.

Glad you like your job Lysistrata and that it has things you can do when your not your best 😊. Are you researching any interesting disorders currently? I know we’re meant to look for horses not zebras, but I swear most osteopaths work in the savannah and then we panic cause their ain’t no horses there! 😂

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in reply to EmmaF91

a year ago

I wonder if that's because you can muster a wheeze and a decent PF drop? I have managed the unholy triad of maintaining sats (via a very high HR), no wheeze (silence generally but they can't always tell) and a peak flow that is both higher than expected and doesn't reliably drop. Even I have doubted myself at times and every cons ever has sent me to physio repeatedly. If it were a drug they would have given up long before! They mostly think physio has magic powers it seems - RBH cons told me if I was no better it has to be my fault for not making an effort (I quit after that. The physio was lovely but had said she could see despite me trying there wasn't any more she could do for me at that point - she had worked on what was wrong).

Can't go into too much detail as it is linked to the drugs/clients I work with but they are all interesting ans horrendous - mostly neuro (lysosomal storage disorders - horrible but gene therapy has a lot of potential), some genetic immune disorders, autoimmune neuro stuff, and a very odd and nasty genetic disorder that causes havoc everywhere (mostly heart and nerves) and is a zebra that is almost always seen as a horse - it's known as The Great Masquerader. Most of these have the problem that they are not only rare but mostly fatal and/or very disabling and until recently had no treatment, so there wasn't seen much point in diagnosing them because you just had to say sorry you have x that is it. Now they're interested in screening because if you treat earlier you get better outcomes.

in reply to EmmaF91

a year ago

Or when they make you do it more than once despite once nearly killing you - yes I know it's meant to be best of 3 but seriously...I feel in my case the effort to do it is probably more use than the number! Last time I had one who wanted me to stand up and do best of 3 when any movement was very hard...she was a bit conventional and I think had decided I wasn't really that bad as she nearly sent me home. Another time I'd just got things a bit less horrible and the med reg said...peak flow? I looked at him and he said ok maybe not...lol. My expression was a lot more communicative then!

I really hate discharge letters...professionally speaking as well as in my asthmatic role! The lack of context is shocking and they're not worth the paper they're written on half the time. I do know it's done by juniors with very little time and probably no training in how to do a good one but in that case they should rethink how it all works. I know my GPs either find them useless or if that way inclined, used to use it to prove a point.

1 like

in reply to Lysistrata

a year ago

Discharge letters are so useless! The only things correct on my last one was the pharmacist name and the time frame I had been in 😂. I didn’t have a docs name anywhere on it (I checked cause I wanted her to be my cons), and all my admission blurb was incorrect 🙄.

My new hosp only ask for PF after treatment to avoid that situation and will let you dictate how you do it (standing vs sitting) until you’re on the resp ward! It’s odd but I usually have 1 pre from before I come in so use that if I’m ever asked what my presenting PF was (which does happen 🤨). Not going to lie, sometimes I cheat my PF if I know I need to be in but they’re borderline... a little less puff (420/630) and I defo get admitted, if I hit 450 they um and ah a lot more 🙄

in reply to Lysistrata

a year ago

There really should be more training on it! Lots of my friends who were doing finals last year were moaning about this apprenticeship period my uni runs (basically you work with a junior for a month or two to learn the job properly) and kept saying they could learn to do discharges and chase results etc in a week.

I did understand the frustration but was also sat there like “you clearly have not read some of the discharge letters I’ve had!!”

I normally like to at least attempt if they ask, and then at least I figure they can’t tell me I’m putting it on/being a wimp! 😂 once or twice they’ve actually put me on a blanket ban from attempting it for a couple of days while they got me stabilised, which was quite pleasant actually! To just be able to sit and “enjoy” the nebs etc as it were without worrying about how much my peak flow would pick up!

2 likes

in reply to Lysistrata

a year ago

Must me why... usually when I present I’m a very obvious asthmatic (to the point where other patients/visitors can ‘diagnose’ me). If I’m in a&e my sats will usually drop to the lower end of normal, my PF is usually pretty reliable (it’s how I decide when I’m going in cause otherwise I live in Egypt), and I do usually wheeze... however just missing 1 of these 3 can make the trip more difficult 🙄 It must be very frustrating missing all 3! But if it helps even with all that I still question if I’m bad or if it’s all in my head!

Oh didn’t you know? Physios are magicians - they can cure any thing!🧙‍♀️🧙‍♂️ - I wonder if that RBH cons is the one I’m thinking of and had a bit of trouble with last year 🤔😅

That’s fine I understand confidentiality, I just like the werid and wacky 😜. It sounds very interesting and if screening for them helps so down the progression then it’s defo worth the effort!

1 like

in reply to Lysistrata

a year ago

Normally I’m ok in the initial acute stages as I sound pretty dramatic with the cough (and thankfully the wheeze that now rears!).

I still remember my awful attack in July while I was standing waiting to check in everyone was looking at me extremely worried, but the couple of people in front kept looking at me weirdly... and promptly turning back around 😂 and then when I finally got to the front they literally just asked for an ID card and wheeled me into the triage while they checked me in - such a VIP 😜💁🏻‍♀️

I just run into issues a little once I’ve stabilised a bit more and the wheeze has gone (nearly last to appear, first to go!) so the worse a job a&e has done - the more they panic at resp😂

Oooh yeah, gene therapy is fascinating! Cannot wait to see what the future brings with it

in reply to Lysistrata

a year ago

I used to miss a&e completely at my old hosp... would take myself straight to amu and get outpatient treatment there for a few days... it was lush... no inpatient time, no waiting time, no arguing... the only issue was that they wouldn’t admit me even if I felt like I needed to be 🤨

I think the worst I’ve been was in reception waiting for triage and doc (who for once I didn’t know) walked nearby (heading towards me but stopped at the desk). I then heard her ask why the ‘obviously very severe asthmatic patient whose wheeze could be heard across the room’ was sitting in the waiting room, she got told I was waiting for triage (had been for 30-45mins by this point)... she said ‘no she’s not’ came over asked my name and got me in a wheelchair... she grabbed my notes on the way past reception again 😂. I was so embarrassed by the drama of it all 😳😅.

My issue is I usually respond really well to nebs (PF goes up by about 100 each) however it won’t last and plateaus at about 70%, but they try to get rid of me even if I explain this... it’s only on the 2nd trip in 2 days that I’ll get admitted 🙄. I rarely get to resp on the day I’m admitted (jealous of you do!)... I now have to go to MRU before they’ll think about a transfer

in reply to EmmaF91

a year ago

ugh 30-45 min for triage is ridiculous! Good on that dr...reception etc ought to pick that up even if not medical. At my usual place they have a nurse on the front desk which tends to work well, except the time when I nearly got sent to UCC where she was completely useless and ignoring me. Mostly they are very on the ball there.

I once had a delightful episode where I had an attack visiting my friend in hospital - her nurse offered me a neb but I didn't think he was serious! Friend and the nurse then told me to go to A&E (she told me afterwards they'd both agreed I'd be admitted) but I couldn't make it there. I was sitting in the corridor trying to make it when a porter was passing by and offered me a lift. I said yes but didn't realise he would wheel me into A&E shouting 'SHE'S HAVING AN ASTHMA ATTACK' very loudly! So embarrassing lol. This filtered into the staff all hearing about it and someone asking if I had been picked up by security...

I usually go to an admissions ward and resp if I stay longer. I can have the same thing you do with initial response then dropping off - kudos to the conventional dr for at least listening to me though it helped my PF dropped too. I feel like I often get kicked out sooner than I should from wards because the numbers start to look ok even when I'm still struggling to walk. If good like last time they pay attention to everything, if awful like the previous time they don't care that my HR is 150 walking and my PF drops like a stone on shuffling down the corridor - no sats drop is all that matters.

1 like

in reply to Lysistrata

a year ago

My new hosp have a much better system... you queue for triage (10ish mins), triaged by a GP, queue for reception (if you’re red carded you miss the queue) and then go to the right dept. Red is majors/resus, purple for majors lite, blue for minors, orange for paediatrics, white for minors and green for GP. So far I’ve only had red and purple (who sent me up to majors eventually anyway).

🤣 you definitely got picked up my security! I’m sure your friend didn’t want you to get admitted just to keep her company!

If I get to the resp ward, I insist on not leaving til I can walk to reception and back without dropping to red PF zone or needing a neb, otherwise I know I’ll go home and spiral very quickly cause I can’t slow down 😅. Luckily my current hosp supports this idea esp as I usually only take 4-5 days to get to this level (it took longer til I started the biologicals!)

1 like

in reply to EmmaF91

a year ago

Yeah my hospital has a similar system - you queue for triage which doesn’t tend to take too long and then either go back to the waiting room or are shuffled through to your next destination! Depending on what you need.

Yeah the other day because I was wheeled round from placement I came in through one of the doors to the primary care zone with the reg I was with announcing “hi I’m one of the dermatology registrars and this is my medical student who has very severe asthma and is having a severe attack now HERE ARE HER OBS” which she had written on a bit of card 😂

I remember once while visiting family I had to go in, tried to get away with the local urgent care who did neb me but rang up a&e (half an hour away) who wanted to see me still. Because I came with a referral letter they seemed to forget I was asthmatic, so I got called into minors. Walked round, was put on the monitor to do obs and saw the colour drain from the HCAs face 😂 particularly when I told him my sats were normally perfect - as they were sat in the mid 80s at that point! He sprinted off and I was promptly wheeled into resus haha!

Although despite that they’re normally pretty good there too and I often get many glares from people when I get taken straight through while they’ve been waiting! 😅

2 likes

in reply to EmmaF91

a year ago

Yeah thankfully I was still making noise on arrival in July but it vanished very soon after 😱 hence the telling off I got for walking haha as I apparently literally just got there in time 😂 we live and learn!

Normally I wait until I can’t speak before heading in because I know if I gasp “asthma” at them and they put in my details and see the long list of asthma attendances they whizz me through quickly!

Oh definitely! I really understand why patients get very frustrated at things 😂 although it can make it doubly hard because I see the annoyances from both sides! I also think being an inpatient has helped things like my history taking skills as people quite often want to talk about why they’re in so I’ve found it quite helpful to get better at building rapport and trying to make things more conversational than feeling really regimented

in reply to Js706

a year ago

Yep I can definitely see how it's going to help some aspects of being a dr (or osteopath for Emma!) - I think some drs just don't get what it's like to be the patient and how they can come across. You'll also appreciate the QoL issue a lot more - I think it's hard for many drs to appreciate that it's not just about the admissions but the day to day can be hard. I really got the pt perspective in one disease I work on which can cause acute pancreatitis - horrible but they all said they mind the daily pains and terrible restrictive diet more, while the experts tend to focus on the pancreatitis.

I also tend to wait till it's hard to miss and hope not to wait - I know it's supposed to be early in early out but if you're a freak like me it doesn't work - I just get sent home and then have to go back! I think that's why I tend to have less trouble on balance in A&E than in clinic as it's much more obvious I am struggling. I have had cons look at the terrible paperwork (always puts 'on admission' for post treatment) -they weren't there to see me at the time and I often get comments on how I looked awful and now look much better, which is hard to convey on paper!

1 like

in reply to Js706

a year ago

I had that for a dodgy back - no euphoria but knocked me out esp plus diazepam to.stop spasms! All the aggro over getting asthma treatment when bad ans they just hand those two over!!

Yes at least the first one put the asthma on too (second one just put DB and I was furious. The SHO tried to help when I objected but her hands were tied on that - she did add a bit but could not change it. Was so cross and upset but she at least got it.) Problem is the first one chucked me out far too soon - following year I had a pretty bad one and this time there was no DB question (I think he went on gases the first time even though they were post treatment and first dr told me showed compensation). He still chucked me out when I was struggling to get to the bathroom next.to me.

in reply to Js706

a year ago

Nooo! Definitely caused by the bad luck cloud that is definitely a side effect of severe asthma 😂

Seriously?🙄 I’ve been in the same place, but luckily I always have my own with me so if I know it’s due and I can I’ll just take it and tell the docs next time I see them 😅 (I have a meds’ bag on me all the time with at least 1 blister pack of each of my meds plus my preventers). Last time it was cause they prescribed antibiotics which I need antiemetic with (or they dont have time to do anything 😅), and they didn’t record the antiemetic- I told the nurse what I was doing (had some in my bag) and told the doc the next day 🙄.

So now your levels are going to be stupidly low, and you’ll have to build them back up again! 😤 I fully support your annoyance (and if you had a go at the docs I won’t tell 😅🤫)

Hope they’ve got it sorted now and that you’re starting to feel better! X

in reply to EmmaF91

a year ago

I had it with me but sadly it had been locked in the drawer! I think it generally wouldn't have caused too much of an issue but given how quickly I metabolise it and how unstable I still am despite improvements it all added up! The team today were not happy about it not being done last night haha

Unfortunately showering with that brought on a bit of asthma, which caused coughing and then made my pain way worse so couldn't get a decent breath in. They've now decided its mainly pain related as my chest was pretty good by the time the reg came back to review me (4 nebs later so not surprising :P) and while it definitely wasn't helping I do suspect they may have gone down that path to avoid an incident ;).

Been on 2L oxygen for the afternoon which has at least given my chest a bit of a rest and now managed to move that down to 1L. Also had an extra dose of painkillers and we discussed changing to tramadol regularly if I need it as they're really keen to be on top of it given how poor my immune function is right now, but currently I'm not keen to do that if I can avoid it!

Feeling much better now and am at least comfortable if I lie veryyyy still!

1 like

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