I’m in need of a bit of advice and I think my question is well placed here given all of your experiences.
I’m terribly allergic to lots of things and have been under immunology for many years and they do a great job of managing my allergies. This year, I developed a serious case of breathlessness and was relying on Ventolin a lot. It would come on quite suddenly and leave me quite tired afterwards. The GP started me on Clenil (I’ve used this in the past) and referred me to my very lovely asthma nurse.
Fast forward 2 months and I’m cured! I stupidly stopped the Clenil (I really should know better!) and within a month the breathlessness came back with a vengeance (when we had that ridiculous hot weather). The breathlessness attacks would leave me absolutely exhausted (heavy limbs, slurred speech, the lot!) and wiped out for sometimes days on end- it was pretty horrendous. At this time my peak flow would drop to around 320 (PB = 490). Clenil was then switched to SERETIDE.
I was referred for a private diagnosis whilst awaiting my NHS referral and the doctor unfortunately would not listen to the full story and my history of allergies and told me to stop my medications and decided it was anxiety. His deciding factor was my lack of wheeze (I haven’t wheezed since starting montelukast a year ago, prior to that I wheezed every night). I’m literally the happiest person in the world, there’s not an ounce of stress in my life and I don’t feel anxious or depressed in any way- to which my GP also agrees that’s it’s not anxiety or stress related. Three days after stopping the meds, I deteriorated and was back on them along with a course of pred.
I’ve just had my NHS spriometry test and it came back in the normal range and am still awaiting an appointment with the respiratory consultant.
I know that my situation is not uncommon and I’ve read a lot of people here commenting on similar battles. I guess I’m just looking for some advice with regards to what I should do next. I just want a firm diagnosis and for me to never have an experience like this summer again.
Thank you in advance