So after my mepo got postponed last week and I was increased back up to 40mg pred, my discharge summary came through asking me to get my HR checked at the docs as they were concerned that it was so high. I dutifully did so today and get told my HR was regular at around 95.
HOWEVER, no air movement to lower lungs bilaterally, and a wheeze which the doc says is ‘painful to hear’ means I’m having to head back in to a&e esp after a week of high roids. I said I was happy to pump away at home and the doc was not amused 😂. Ok so my PF was below 50% but that’s only cause I hadn’t taken my vent for a couple hours (cause of the HR check).
Definitely living in denial atm I think 😅
Ugh! Hope they sort you out without jail time. So frustrating with all the up and down you seem to have had recently. If you ever manage to get the mepo maybe it will help...
Just got out of hospital with the usual persistent high HR thing (which I think landed me in HDU initially) but they seem to be ok with it/put it.down to asthma given ECGs were ok! I'm not bothered but do find it weird how they are all over it when I'm in then it doesn't get on the discharge summary lol, or they pick a random figure to put on.
They’re already talking jail time for me as have dropped so regularly for so long and constant issues for the last week (or basically since I was last discharged from hosp 😅). Med team thought maybe only 1 night tho and just for obs.
Docs here not impressed cause to get my sats to 98 on air my HR goes to 150+ currently it’s settled at 96 with a HR of 130ish so yet another ecg coming my way 🙄. When they first attached me tho I was 93/94 sats so it’s probs a good thing I came in 😅. Currently on an o2 driven neb - sats 99, HR 113 (maybe they should have O2 driven from the start 🤐)
Had my abg gave the doc bonus points for little pain, however he’s lost some due to the big painful bruise with came up immediately after 😂
Currently on a mag bag and strapped up to all the monitors (have so far avoid setting them off 😇), and have also so far had 100 hydrocortisone and 4 nebs (but apparently I’m still wheezy) 🙄
Yes I’ve decided that it they don’t give me the mepo next week, I’ll never get it as 3rd times the charm 😂.
5th trip to my ‘new’ hospital since August and I’m now starting to get recognised - think I should be worried about that! My last hosp took 6 months to ‘know’ me. 😅
Discharge letters always make me laugh - out of the hundreds I’ve had one 1 has been completely correct - I’ve had wrong diagnosis, wrong starting obs/PF, wrong gen info, no info etc etc.
I love how they do obs too - if I’m a steady 93/94% sats but cough/laugh myself momentarily to 95, guess which one they record. Same with HR - I jump about a lot true but if I’m averaging 121-128 then surely they should pick 12?, but they’ll take the 115 I hit for 1 second 😂🤷♀️.
This was the first time a hosp told me to get my GP to check my HR, but I always blame the drugs/asthma - I just know it isn’t good to be constantly tachy 🙄
Oh no 😣. I hope you start to feel better soon and don’t land back in serving time!
(Sorry if this is all over the place - a lot of drugs and interruptions- when I started I hadn’t seen the medics and had only had 2 nebs 😂)
Ugh! Sounds fun. I hope it really is just one night and actually starts to.sort something! At least you're getting the treatment and not the faff around and see. Hoping eventually the mepo happens. Do you have clinic coming up any time or will they just say wait for mepo?
Thanks - you actually inspired me this time as I remember you saying oj here you insisted on waiting to see what happens after initial nebs etc. I got a bit better after first lot of nebs and hydro and could see ED dr thinking I could go (this was in notes as HDU dr told me), but thinking of your approach ans my usual pattern I was more insistent than usual plus my summary backed me up that I would get worse again - dr was a bit conventional but willing to listen. So thank you!
I went in Mon after a bit of a dramatic episode from work, left Sat afternoon. I would never have actually done anything myself at that point because it was more sudden than usual (bad Sat but better Sun and able to work Mon but with lots of Ventolin) so figured it might just go. My colleagues however felt ambulance was needed. I still feel it wasn't the worst ever just more sudden and why HDU (only 1 night). Thankfully it was a good experience this time with everyone as the last.3 were frankly horrible either completely or partly!
Yep the discharge summaries are so useless, and my former cons used to think that 'on admission' with random obs meant I had come into A and E like that, as opposed to this being random obs taken post lots of treatment - there is zero context usually. They also never ever seem to say what I had in ED so makes it sound like I came in, had one neb ans got better, when I'd never go in then nor would I be admitted if I tried! Guess it explains why cons always thought I was exaggerating, but you would think they should know how it all.works!? My job involves writing about medical stuff and these summaries are painful professionally as well as personally!
Yes - I love a good trip to my local a&e 😉. I’ve been tagged and defo in for the night with resp review in the morning.
I’m meant to get the mepo next Monday so I’m hoping that I’ll be fine by then!
Yeah on my ‘info’ sheets I tell them that I’ll respond to nebs but they won’t last so I need hydrocortisone, and since I’ve added that they’ve been quite good at not faffing too much (despite their apparent love for mag bags 🙄😂).
You’re welcome 😉 - I’m glad that standing your ground worked for you and that the docs listened! Most of my a&e docs love me cause I do know my body/condition so well and can usually tell them what I need, and will admit to them if i probs should stay even if I’m saying I want to go home! And I can usually reason out what happened (I’m good at explaining away symptoms 😂).
I know what you mean - I only came in cause of the GP, but my mum said I probs should have come in yesterday. Triage GP said I should have come in a lot earlier (ie as soon as as I started over doing the vent) but if I had then it would have been like every day since I was last discharged 😅🙄. I told them I was at Brompton last week and they weren’t too worried 😅. I came in when prompted and watched people worry whilst I sat there telling them I’m fine, cause I always compare to my worst too 😂.
I’m glad your hosp experience was a lot better this time! It’s so variable when you come in, even when attending the same hospital 🙄
I love the mag bags! Though got a bonus one this time in HDU 'to sort your electrolytes' - a slight mystery if I'm honest, but perhaps related to the low potassium? Never had that before amazingly despite ventolin and Phyllocontin, and sando K is ugh - I am wondering if all the fluids I got in A&E to lower my HR (with no effect) did that. Sadly the second mag bag didn't seem to be quite as magic as the A&E one...
This time they were all over my summary including the paramedics (who were great - none of the 'ooh you're not wheezing and your sats are fine' (they said I appeared to be getting air *in* fine but nothing is going *out*). Everyone who saw the summary loved it so all hail the summary
The only problem is that really rubbish drs at other times don't even want to look at it, or if they do they apparently don't bother to read it properly. This time it helped with a) yes my HR is doing that for asthma, I don't have a pulmonary embolism and you do not need to withhold nebs b) yes I will get better then worse.
I am also very confused when to get help given that the GP's view would also have me living there recently! The resp physio said 'it doesn't usually come out of the blue' and I said err well no but I usually don't find I'm capable of getting to work the same day this happens!
Yep re the variability - I kept waiting for something to go wrong but this time it actually was fine the whole way through - if only it could be like that every time. I did actually come out and say last time I feel I was chucked out before I had managed to successfully transfer to inhalers and it really wasn't great.
Crossed fingers for 3rd time lucky with mepo and a good review tomorrow! sorry have realised I am rambling about my admission when you're actually in.