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Lessons I have learnt during my first CVA attack

Limefime profile image
6 Replies

I am rather forgetful and like to write things down so I can read it again later. I am not good at journalling but find that an odd blog post can be helpful.

I had to learn quite a bit about "taking asthma seriously" over this weekend and started a blog about my asthma journey.

I'd like to share one post, about lessons I've learnt (or hints and tips, had I considered myself in any way qualified of giving those): cvashapeshifter.blogspot.co...

I hope that it may be helpful to someone who finds themselves in my shoes during their first attack - ignorant and clueless on where to start.

Pehaps people who are more experienced and on top of their asthma would like to add their two pennies so that I can add what I have perhaps missed?

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Limefime profile image
Limefime
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6 Replies
Lisacharman profile image
Lisacharman

Fantasia and very true until I have been repeatedly admitted to itu and stopped breathing etc this is every day life and true to fact I think asthma should be put on the life threatening list so people get the medication free the same as diabetes or thyroid sufferers just be nice for it to be recognised for what it truly is an unpredictability without much warning in a lot of cases

Lisacharman profile image
Lisacharman in reply to Lisacharman

Fantastic I hate predicated text so sorry guys.

EmmaF91 profile image
EmmaF91Community Ambassador

Minor celebrity 🤓😎😂. It’s also important to update your asthma plan anytime your meds or PF change/condition changes too. People forget that they can go ‘out of date’!

Mine was 6 months out of date once and all my drugs were wrong, as was my yellow zone directions - luckily by this point I knew my condition well enough that I didn’t need the plan 😅!

Limefime profile image
Limefime in reply to EmmaF91

Haha. You do say very wise things, so bound to be quoted!

This is also sound advice and I'll add it to my notes. It is true that you need to update it - at least annually.

I had been to see the asthma nurse every year, more by (bad) luck than design... My asthma started flaring up again each year at the same time and I had to get inhalers as mine had run out in the summer. Fortunately this year I had a repeat prescription for the preventer and haven't needed the reliever until last week... Will need to see the nurse as an aftercare visit is advised, so 3rd merry year in a row!

EmmaF91 profile image
EmmaF91Community Ambassador in reply to Limefime

💁‍♀️ 😂. I just have a lot of experience through trial and error so usually know what to do, plus enough medical training to be able to research (and not panic) and explain in lay terms!

Sorry to hear you’re ‘forced’ into an asthma review rather than invited to one 😞. Unfortunately I ended up not needing one for a few years as was at my GP with asthma attacks almost weekly and was under the hospital team so they put them off at my GP. Now I meet with asthma nurse at my specialist hospital every month for injections so don’t know if I need one at GP 🤨😅. Got one in 2 weeks tho at my new GP which will be a laugh with all the drugs I’m on - let’s see what they say! Hope you’re starting to feel better now x

Limefime profile image
Limefime in reply to EmmaF91

I am very grateful to say that I am starting to feel better. I am back to the green phase on my asthma plan from today. I have not coughed myself awake for two nights and only have a little niggly cough during the day, when it surfaced. Been to the gym twice and, though not pushing myself by any stretch of the imagination 😁, I have managed the session well (no coughing).

So sorry to hear that you are struggling so badly with this monster called asthma. I read elsewhere about your difficulties. Thank you for supporting me at the same time. I do appreciate that very much.

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