New drugs: hi my name is feeder .been a... - Asthma UK communi...

Asthma UK community forum

17,263 members21,700 posts

New drugs

Deedee111
Deedee111

hi my name is feeder .been a brittle asthmatic all my life am on sub cut bricanyl have also been on iv ventolin untill I got blood poison,and always willing to try new things. See my consultant often cant remember what the drug is called but he wants to start me on monthly injections wanted to know if anyone has gone or been down this road.will know more Friday anyone got advise what to do next,I normally house bound quite alot of the time but been spent alot of the last 18months in bed alot of the time I seem to do full circular.steriods all the time 40mg to 60mg daily predosional nebulizers ventolin atrovent ,my infusion then I went down the road of Hickman lines and portocaths iv acess at home I really don't want to go down that road again please has anyone have advise or suggestions.like u all know it gets u down from time to time. Thank you

4 Replies

Hi Deedee111, sorry to hear you are having such a bad time of it. I don't have any helpful advice unfortunately but just wanted to send you a big hug x

Deedee111
Deedee111 in reply to Yogamad36

thanks means alot ,feels like a losing battle at times been feeling really low alot recently not like me at all don't have self pity I just get on with it normally. I get house bound alot but I have been spending alot of time in bed , I been in bed for 8 days now am so tired and drained .my son is great does so much for me he is only 21. You try to do ur best as much as u can as a mum I was a single parent I manged to keep it from children as they grew up I wanted them to have a normal childhood, butmy son says to me why mum keep it from us for years. I could of done more .then I said that's why . It helps talking to ppl like ur self who know how u feel and that means the world. How are u doing how s things for u Dee,hugs xx

Yogamad36
Yogamad36 in reply to Deedee111

It does get you down when your stuck in the house, your son sounds very supportive. This is a great forum for support. I just want to get my health back: 6 weeks into an Asthma Exacerbation and no end in sight. Slow recovery. Will see what GP says today x

Deedee111
Deedee111 in reply to Yogamad36

me to good luck with urs let me know how u get on. Also if I ask u things again and repeat myself my memory is really bad and on alot of morphine waiting to see someone about it good luck dee

You may also like...