HP: diagnosed 4 years ago. misdiagnosed... - Asthma UK communi...

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HP

C0life18
C0life18

diagnosed 4 years ago. misdiagnosed 6 years ago. NEW TO THIS FORUM. Most pulmonologists know of HP but don't really KNOW HP. Misdiagnosis is abundant.. I lived in Arizona so I was misdiagnosed with a usual local issue called Valley Fever, which I did not have. Treated 2 years for the wrong thing, I chose to go across the country to the Mayo Clinic in Minnesota where NO snap decisions were made based on where I lived. After open lung biopsy I have chronic, idiopathic hypersensitivity pneumonitis. If you are not seeing a highly trained specialist, you are making a huge mistake.

I take 3000 mg of CellCept / Mycophenolate daily which is the max. 15 MG Prednisone, assorted puffers and pills all from Mayo recommendation.

5 Replies
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Hidden
Hidden

What are the symptoms and how does it differ from asthma?

C0life18
C0life18 in reply to Hidden

look up hypersensitivity pneumonitis,. Tons of info. To much for this venue

Is it this, C0life18?

lung.org/lung-health-and-di...

C0life18
C0life18 in reply to beech

yes

Hypersensitivity Pneumonitis

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