2nd Xolair Injections: Well I'm now on... - Asthma UK communi...

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2nd Xolair Injections

Lizzie1956
Lizzie1956

Well I'm now on month 2 of the Xolair injections and I have to say, so far so blooming good! No Ventolin used now for almost a month, and on 2 x 2 puffs of Foster daily, as well as Montekulast. I've been off oral steroids now for a month and the Citalapran really seems to have kicked in too, so I don't feel a fraction as miserable and anxious as I did. A quick chat with my consultant and he was delighted that I felt so much better and able to do more., i.e: 17000 steps and regularly 12 - 14000, can walk up and down 3 flights of stairs (albeit slowly) so it looks as though I shall be on the objections for a few months before he reviews properly. But the winter is my worst time, so trying not to get too excited.

I've managed a 2 hr shift at work (I'm in hospitality, but it's my own business) last week and it was very tough! So I'm still, after 6 months of hell and 3 long hospital admissions taking things really, really easy.

The hot weather is so good for me, I could easily live in this sort of climate and am really considering that as a future option. Most of the carpets are up and replaced with Oak flooring, all that is helping with less dust and easier to keep clean.

So all in all, it's a good start after a crap year! More info as it happens.

Liz x

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Lysistrata
LysistrataCommunity Ambassador

Very pleased they seem to be working, all sounds very positive! How do you fit so many steps in?! Even without asthma I'd struggle to fit that into a normal day - or is it the gym? Sounds like you really deserve a better period.

Crossed fingers they keep working even in winter and glad someone is enjoying the heat lol as it seems a shame not to when it's quite rare here!

I walk an awful lot with 2 dogs and on the particular day I was moving us back into the bedroom - so up and down stairs a ridiculous amount! Gym?? Not likely anymore. 🤣 x

Lysistrata
LysistrataCommunity Ambassador in reply to Lizzie1956

Ahh the dogs explains it! Thought the Xolair might have inspired you to join a gym...but have to admit I find it very boring even without the lung issue!

Not likely!! The money I’ve spent on gyms, trainers etc etc I could have had a cruise!!! 😂

Congratulations. Glad you’re feeling better. Guess at some point it will be useful to try and figure out whether the Xolair, Citalapran, High Dose Fostair - or all three in combo - is what’s helping you, as I imagine, you don’t want to end up taking one or more unnecessary drugs for years to come. Still, one step at a time I guess. Good luck.

Lizzie1956
Lizzie1956 in reply to Matman

Yes totally! I’ve been on that dose Fostair for a long time now, but the cialapran is short term as 3 hospital-admissions in short succession& v high doses of steroids tipped me over the edge. I guess it’s a case of wait & see. But my consultant is brilliant so I’m completely guided by him.

Liz

So glad to hear that life is better. I am seeing a consultant today as getting results for allergies. I know I still have a chest infection after nearly 3 months!!! So hopefully will get chest X-ray now!!!

Glad that the injection has helped you. Ann xx

Lizzie1956
Lizzie1956 in reply to Smudge12

It’s grim when infections/virus’s hang around. Stubborn little buggers 👎🏻

Glad to hear it’s helping! I’ve just started mine so have my fingers crossed it’ll help too 🤞

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