So I FINALLY have the ok to start xolair and should be starting it on the 23rd! Woooooo! I’ll have to have injections every 2 weeks but compared to hospital every month I’m more than willing to go along with that if it helps!
But it definitely couldn’t come soon enough, have been feeling rough for a few days and so decided to wander over to a&e yesterday evening for a check over and some nebs (as my new house is only 2 streets away!).
Cue me rocking up to the walk in bit with a completely silent chest, unable to speak, sats through the floor and generally causing panic all round 😂 oops....
So I’m now sat on my old friend IV aminophylline on respiratory HDU and have just had critical care mentioned to me as a legitimate possibility if I deteriorate again 😔 I’ve had critical care outreach review me a few times before but the possibility of going up to ITU hasn’t ever been brought up before - so fingers crossed my lungs stabilise today and then behave themselves tonight!!
Hope everyone else is well and managing to enjoy the sun rather than suffering in it!