Zolair: Hello - I'm new here although I... - Asthma Community ...

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Zolair

Lizzie1956 profile image
4 Replies

Hello - I'm new here although I did loiter for a while some years ago :)

So after a few years of denying that I my Brittle Asthma was out of control I've now agreed to go with the Zolair trials. I'm a little nervous but have lots of faith in my amazing team - Consultants, Nurses etc. They are all marvellous and I know I'm very lucky. The injections start tomorrow, and my biggest fear is that I'll have a negative reaction to them. I'd be interested to hear from anyone who's undertaken them.

Thanks You

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Lizzie1956 profile image
Lizzie1956
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4 Replies
angievere profile image
angievere

I’ve only just seen your post. My now 21 yr old son started Xolair about 4 yrs ago and it turned his life around. Within about 3 months of starting Xolair his asthma massively improved. He’s still on maximum medication and if he gets a cold he gets wheezy but otherwise really well. It was like a miracle to us. Also, he didn’t have any reaction to the injections.

All the best and do let us know how you can on. xx

Jenzzie18 profile image
Jenzzie18

Morning. I was on xolair for a year. I started it in feb 2017 and came off feb 2018. I didn’t really have any major reactions to it other than it made me really tired for the rest of the day that I had it. Mine was stopped as it wasn’t really effective enough. It helped a little for the first six months but I found I was still having many hospital admissions (8 from September to the feb when I stopped). My consultant is now thinking again about treatment options. Good luck with it I have heard of many who have had amazing results from it. Just didn’t work for me. X

angievere profile image
angievere in reply to Jenzzie18

Sorry to hear that. I hope an alternative treatment is found and things improve for you. xx

Robin77 profile image
Robin77

Hoping it works well for you! You'll be well looked after, don't be anxious. All the best.

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