Asthma UK community forum
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Chronic breathlessness

Hi guys,

I posted last week regarded being newly diagnosed. I was just wondering if anyone suffers from breathlessness all of the time every day as that’s what I am experiencing. I’m hoping my inhaler kicks in and starts to relieve the symptoms but I have a slight fear that it’s not going to!? I know there are different types of asthma but I associated it with a cough or wheeze and I don’t have either of them. Thanks for reading :)

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Hi Srmeod Sorry to read you are struggling with breathlessness, it is awful, as I have the same problem and have had for a very long time. After many many tests diagnosed with Asthma, preventer and deliver medication stops cough and wheeze but nothing helps the breathing issue.

Currently trying to learn to breath differently which I am finding very hard but do think there is a very very small improvement. Have a look on Asthma UK site for more info or contact them for advice, ask your GPsee if you would qualify for a pulmonary rehabilitation program.

Sorry I am not able to help only sympathise, I do feel for you cause it is awful and really affects your lifestyle.I am sure others on here will be able to give you more help and advice there now so much knowledge on offer. Best of Luck🍀🍀

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Thanks for replying and I’m sorry to hear your still struggling with your breathing as I know it really can be quite debilitating.

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Hi again :)

One of the things that I know struck a lot of us about your other post was that you had really persevered in dealing with the health system to get to a point where you felt you were getting better answers, and perseverance is probably the order of the day here.

The really important asthma inhalers are long-acting and can take weeks, maybe months to really build up in your system. Definitely don't get hung up on wheezing; it's quite common for asthmatics to have shortness of breath but not wheeze or even cough.

I don't know if you've been prescribed a reliever inhaler yet (usually a blue one, most commonly Ventolin). I would certainly try & persuade your GP - indeed I was quite surprised on your other post that you hadn't been given one. Ventolin has no long-term benefit but should help you breathe better if you're struggling.

Just a final point, & perhaps something quite important to you. Try to get into a mindset that this will work - there's lots of fascinating research about how people's beliefs around their medication influence its success. These drugs really are tried & tested over many years, so keep telling yourself that you are going to get better.

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Thanks :) have not been prescribed a reliever inhaler as of yet. I am going to get a spacer for the inhaler I currently have to hopefully help me get the medicine in better as I feel like I don’t fully have the hang of taking my inhaler properly sometimes I do it great and other times I feel like it’s just landed in my mouth. I think your right about getting in the right frame of mind. PMA! Thanks for the advice :)

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Hi srmeod, asthma is not fun eh😢 If you have recently been given inhalers as the previous posters have said it takes your body a while to get used to then it can take weeks but soon you will have a stable peak flow keep taking every day hopefully you'll soon start feeling better well as better as an asthmatic can. Try breathing techniques too, I find they can really help to open the lungs. Ask your nurse to show you how to use the inhalers there is definitely a knack to it, it took me ages to master it. I hope you find some relief soon xxxx take care

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If you had a reliever inhaler you would have instant relief and the airways would be open wider to take the prevention in better.

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