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Tracey1972 profile image
21 Replies

Hi everyone well been rollercoaster ride in here now on 40mg steroids 35 tomorrow had really bad morning woke up couldn’t breathe and nurse had to get the doctor in still not right but I’m copping for now not looking forward to going to bed didn’t sleep last night but not through coughing just couldn’t sleep nurse kept saying to me u still awake lol but chesty this evening again so going c how it goes but I will get there physio next week that b fun and they want me to start the gym here as well meant to b going home Friday but doc said might b longer c how my body reacts to this weaning so far body not liking it hope everyone else doing ok thank u to all of u who has had helped me through these rough times ur words mean a lot x

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Tracey1972 profile image
Tracey1972
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21 Replies
Mywalti profile image
Mywalti

Hi Tracey, glad you were well enough to post, as I was worried about how you were doing. I think the strength you have is amazing. Life has dealt you some rough deals and yet you always ask how everyone else is doing. Really hope you get some rest tonight. Thinking of you x

Tracey1972 profile image
Tracey1972 in reply to Mywalti

Hi I try to stay as positive as possible got keep fighting I say nurse is giving me a sleeping tablet tonight to c if it will help me I need some sleep big time x

Mywalti profile image
Mywalti in reply to Tracey1972

Fingers crossed xx

Scoobs87 profile image
Scoobs87

Hi Tracey. Hope you are getting better. Hopefully the sleeping tablet, I have noticed if you don’t get a good nights sleep, This has a major effect on how my lungs cope. I am on promethazine which is a mild sedative. Along with the new inhaler. it is giving me some relief. Hope this is helpful to you. Stay strong. Xx

Tracey1972 profile image
Tracey1972 in reply to Scoobs87

Hi yea it is thank u not sure what these r called got a funny name glad something helping u x

Scoobs87 profile image
Scoobs87 in reply to Tracey1972

Just thought I’d ask. I have been put on Spiriva Respimat, but I have found myself a wee bit breathless after talking it. Can you sometimes feel like that until you get used to it. X

Tracey1972 profile image
Tracey1972 in reply to Scoobs87

I’m ok on it I have no problems to b honest have u spoke to ur doc or asthma nurse about it x

Scoobs87 profile image
Scoobs87 in reply to Tracey1972

Got it on Thursday. Got my own gp on tuesday, just to make sure before my fit not runs out, that I am fit enough to go back, I will mention it to him. I am going to see how I get on over the next few days. Only started it yesterday morning. X

Tracey1972 profile image
Tracey1972 in reply to Scoobs87

Ok hope has some answer for u

Scoobs87 profile image
Scoobs87 in reply to Tracey1972

I’ll see what he says. Just don’t want to go back then be off again. So be better getting approval from him first. X

JanJan4 profile image
JanJan4

Hi Tracy, so good to see you have posted, only came into the site before I go to bed to see if any news from you.

I've been on 40mg Pred since Boxing Day, just started to taper and been in the wide awake club thinking of food most nights! When I was in hosp I had a sleeping pill and loved it, very relaxing. Sleep is so healing.

Please don't be in a rush to get home. Hopefully you are asleep now. Thinking of you strong lady 💪 XX

elanaoali profile image
elanaoali

Hi Tracey I admire your strength of character and the way you are already reaching out to others with advice. I hope you got a good nights sleep last night. I hope and pray that you will be able to go home on Friday and are able to be weaned off the Prednisolone. God bless.

WK51FOD profile image
WK51FOD

Hi Tracey. Hope you get a better night tonight and are able to go home on Friday.

I thought my wheezy chest and cough were starting to improve as i didn't cough much in the night but despite my steroid inhaler and the strong antibiotics I am cough, cough, cough again this morn and my wretched chest is wheezy.

My GP is supposed to be phoning me on Thurs so if i am no better then i will ask him for a referral to a chest specialist although I think there is a long waiting list.

Hope you keep as well as you can, good luck.

Best wishes WK51 FOD

Tracey1972 profile image
Tracey1972 in reply to WK51FOD

Hope they sort u out not nice feeling ill and not being able to breath x

WK51FOD profile image
WK51FOD in reply to Tracey1972

Thanks Tracey, you too

WK51 FOD

Pantani profile image
Pantani

Did you manage to get some sleep last night, I kept waking up but finally slept from 4am through to 8 am, Hope you have a better day today.

appyalison profile image
appyalison

Thinking of you Tracey1972. Hoping you start improving very soon. Spring is not far away so something to look forward to.

Kitten-kat23 profile image
Kitten-kat23

How are things going? I hope you feel more yourself soon.

Tracey1972 profile image
Tracey1972 in reply to Kitten-kat23

Having rough afternoon and this evening doc on standby seen him once today and keeping eye on me it’s the drop of the steroids body hurting all over and keep having breathless but there keeping an eye on it x

Kitten-kat23 profile image
Kitten-kat23 in reply to Tracey1972

Thinking of you.

Redhots7 profile image
Redhots7

GOD BLESS & FAVOR YOU 😘😘

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