Update: Hi all just update not been... - Asthma UK communi...

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Update

Tracey1972
Tracey1972
20 Replies

Hi all just update not been great to b honest but I’m in the right place they think I might have something called floppy lung where the lungs r flapping like collapsing while I’m trying to breathe but not sure just had a ct scan to c if anything shows up as still struggling with my breathing and nebs not helping or the steroids they gave me IV hydrocortisone but that not helping either so hopefully the scan will show something as to what’s going on waiting on doc to fill me in but not doing great peak flow 200 just won’t budge doing a sleep study tonight so that b fun b like a robot all wired up hope everyone ok take care

20 Replies
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Kitten-kat23

I hope they find out what's wrong and can do something to help. Thinking of you.

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Matrix

Tracy. I’m so sorry to hear you’re still struggling ,lets hope they can find something to help you .Thinking of you xx🤗🤗😇

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Pantani

Sorry to hear your struggling with your breathing. Hopefully the scan will give them a better idea as to what is going on and what to do about it.

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Tracey1972
Tracey1972
in reply to Pantani

Yea I hope so

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Mywalti

Wishing you well Tracey. I'm sure they will get you feeling better. Let's hope the CT scan gives them some answers. X

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Tracey1972
Tracey1972
in reply to Mywalti

I hope so need to know what’s going on felt right silly earlier started crying in front of the doctor as not knowing what going on and welding a bit scared not knowing x

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Mywalti
Mywalti
in reply to Tracey1972

Don't feel silly about crying, Tracey. It is frightening struggling to breathe. Try and relax as much as you can. Make sure they let you know what's happening and ask as many questions as you want. I hope you get some rest tonight sweetie. Thinking of you x

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susannaylor

Sorry to hear your still struggling Tracy. Hopefully doctors will get to the bottom of your problem and get it sorted for you. And your not silly getting upset in front of doctors that's normal cause your jyst worried about yourself and whats happening to you. You take care hunny and keep me posted

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JanJan4

Hi Tracy, thanks for update I've been wondering how you're getting on. You're nearer breathing relief tonight than you were last night. Huge exercise in patience for you waiting for the doc and scan results.

Big hugs XX

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Tracey1972
Tracey1972
in reply to JanJan4

No still struggling nothing helping driving me mad now hope u doing better than me x

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Karjade

Have a list of questions for your doctor when he comes round as you need to know exactly what is wrong and what they can do and all of your options. Is it possible for one of your family or friends to be there so they can hear what he says and also ask questions? I am so glad you are getting somewhere xxx

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Tracey1972
Tracey1972
in reply to Karjade

No to far away for them to come down but I taking it all in all I do is ask questions the big doc around tomorrow so hopefully find out more and with scan results and sleep study results from tonight x

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Billygoat

Tracey,

Thinking of you very much, wishing you a good night, and keeping fingers crossed for a better day tomorrow.

Jo

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Scoobs87

Sorry to hear that Tracey. Hope everything goes ok. Xx

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Emily-G

Hope you got on ok overnight and that they have some answers for you today. Hope you feel more well soon xxx

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Tracey1972
Tracey1972
in reply to Emily-G

Thank u had a rough night had 4 nebulisers straight in a row and still struggling to breath had about two hours sleep if that I’m so tired

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Emily-G
Emily-G
in reply to Tracey1972

How awful for you, you must be sooo tired. And the shaky jittery nebuliser feeling is horrible. I’m thinking of you and hoping that they can get you more comfortable today xxx

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Tracey1972
Tracey1972
in reply to Emily-G

Thank u the docs r on the ward now so hopefully b here soon and find out what’s what and yea shaking all over going try and get my head down today som time

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Asthma-girl

I hope they will be able to sort you out.

Take care

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Sc99By542

Hi, sorry to hear you are having such a bad time. Hope the scan helps solve it for you. You deserve a break from it.Pam

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