Hi, I'm new to these kind of things but I'm a little lost after my recent diagnosis with asthma. Since august last year I've been hospitalised 4 times for more than a week each time, been rushed to the hospital via ambulance on a code red twice (one of those times was a very close call), I've visited A&E about 9 times and seen my GP more times than I can count and I feel as though it's a never ending cycle.
I'm on salbutamol, fostair and ciclesonide inhalers and was on pred for 5 months (stopped the beginning of January because I can't handle the side effects anymore) and nothing is helping. I've had the breathing tests, a laryngoscopy to check for VCD (only slight narrowing of the airways), CT scans and chest X Rays. I'm currently waiting to see a specialist about a severe asthma diagnosis as my current consultant said there's nothing more she can do as what I'm currently on should be helping.
They find I get an extremely fast heart rate when my chest plays up even the slightest, when I was in hospital over Christmas I had a monitor fitted. I'm only 23 with a 3 year old at home with me, but I feel like my lungs are 60 years ahead of their time! I struggle to walk long distances and there was a period where I didn't want to leave the house just incase something happened. I am in constant pain from coughing and sometimes it hurts so much I can barely move.
I was wondering if anyone else has had a similar experience? or if there is anything anyone else has tried that has helped?
Sorry for the huge story and rambling, I don't know anybody that suffers/has suffered with anything like this and it'd be nice to get some advice from people who have been through the same or similar things!