Hello. I thought I would just introduce myself and why I joined the community.
Honestly, it is the first and only community I have found of asthmatics. I live in Japan, am from the US, but have found that the UK has been the best resource for me since I was diagnosed in 2014.
I don't know the exact details of my asthma. I know the triggers---exercise, cold/dry weather, weather changes, pollutants such as pm2.5, perfume, etc; colds and viruses, and apparently dust mites. I have no allergies, though, and it is a coughing-variant, which means I don't wheeze at all. What makes things worse is I feel like my asthma is very unusual. My peakflow is usually high--my best is 560, but I have been hitting 590 lately. I feel like I am in low-yellow zone when I hit 545, and I feel like the red zone at 480--even though those feelings don't match up with the percentages. I am terrified of finding out what red zone actually feels like, to be honest. I have not had oxygen levels below 97, though I have a high heart rate.
Winters are always the worse. During the brief couple of months of hot, humid summer weather, I can do everything under the sun with very little impact from Asthma. Once the weather starts changing, my QOL goes down hill and I find that I can barely do anything for several weeks. It gets very depressing. In september I was running around, playing with my dog, taking long walks---and now, I am barely able to climb the stairs or even bend over. The last two months have put me in a place where I just want to cry.
I ma currently on Flutiform and Spiriva for my daily (the former at 3 in the morning, 2 in the afternoon, and 3 in the evening: the latter at 2 in the afternoon) and my reliever (I call it my emergency because of Japanese translations) is Meptin Air.
I used to be very reluctant in using my emergency, but with a recently very bad exacerbation, I decided to go full-aggressive on my asthma and take it for every little thing to see if it helps at all this winter. So far...it feels the same, though I suspect that if I had avoided my reliever, it would be worse right now. Basically, I went from taking it only when I desperately need it to taking it about 3 times a day. I desperately want my life back, for things to be like the summer time, but I am always lost on what to do. We are going to remodel our house soon (it is a super old Japanese house from 47 years ago. Yes, the mold and such are horrible in this house, so that doesn't help.) I am hoping the remodeling with help somewhat by clearing up some of the possible triggers in the house itself. I am not holding my breath, though (hehe).
Anyway, I joined this community in the hopes of finding people like me: who are still lost and confused about asthma and struggling to get their life back. I don't know if I am mild, moderate, or severe (I have never been in the hospital, though before I was diagnoses, I had coughing so bad it felt like it could break my ribs). I don't know if it is brittle or refractory or anything at all. I just know I have coughing-variant asthma, most triggers are out of my control, and my life sucks about 80% of the year. I do see my doctor monthly, but Japan doesn't even have an action plan! (I had to make my own), and sometimes I doubt that I am getting the care I need...though he is one of the top specialists on lungs and whatnot. Prednisolone does work magic when I am at my worse, though.
If anything, I am hoping to find support outside of my wonderful husband and his family (they do so much for me) and maybe advice when I am feeling at my worse and like I have no where else to turn. Mostly, I will lurk and read all the posts though XD