Hi! Since my first experience ever of ending up in hospital for some days with an asthma attack 15 months ago, I have been really in good form. During this time I have had a chance to learn what affects me (smoke, fragrances, certain chemicals like oil paints, damp etc),and though I have learned what I don’t like it hasn’t been too bad, really. I have managed pretty well with Symbicort SMART regime. It seems to suit me. But then less than a week ago, I finally succumbed to a cold and was pretty shocked how fast my peakflow levels etc reduced, needing prednisolone and generally needing to up my game. My pf at worst has dropped to a about 60% of normal, and I now struggle to get it up again, though the deterioration is not continuing either. It has kind of plateaued. Just today I have been prescribed my second lot of prednisolone, a good thing as it slowly helps, but also frustrating as it really affects my sleep (there is only so much Nanny McPhee I can watch at 3am when sleep just isn’t going to happen).
But I had another experience I found somewhat confusing and frustrating. Our GP now belongs to one of these large groups. In so far you normally can get hold of someone when you need urgently it it works reasonably well, but you often don’t know the person at the other end of the line. So the other day I rang to ask for some advice how best to manage my SMART under these circumstances. And this gp told me something very different, not the usual SMART regime, which I found confusing. I decided in the end to use my own common sense so just for now I use a combo of hefty Symbicort in twice daily (allows me four spare doses if I need them) as well as salbutamol, which luckily I did have. This gp also said that it was unusual to have pred for more than 3 days. The asthma uk nurse had advised me before specifically to try to make sure I had a backup as many need 7-10 days.
I found all this confusing and a bit concerning. I feel sort of OK about it as I have now got a script for more pred, and I am using SMART slightly differently just now from how I usually go about it. I know many on here have unpleasant, unhelpful experiences, so it is not unusual, but what this gp said is not what it says on written advice. Has anyone else had this experience?