Newbie needs help please !! - Asthma UK communi...

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Newbie needs help please !!

Paula1602 profile image

Good morning everyone

I was diagnosed with bronchiectasis a couple of years ago, and they said I also had Asthma.

I have recently found out that the Asthma is the main problem, and as it was undiagnosed for many years, it caused the lung damage ( bronch)

I have tried many inhalers with steroids but I continue to get a very sore mouth which I have learned is thrush due to the steroids., I got sick of having to use antibiotics for this problem. One doctor a couple of months ago gave me a new Inhaler, just once in the morning , this seemed to stop the mouth infections which was great - but since then I have developed a permanent cough. I now see an Asthma nurse who is great - she advised a tablet I can take in the evenings, but this has side effects of "nightmares, loss of sleep, stomach probs.....etc.." , so as I am awaiting a Knee operation and on painkillers and anti inflamatory tablets for this , I said I would wait until the op was over then try them. Since then the anaethsatist has advised that I take these but I am worried for the side effects and wondered if anyone had tried them and if they work? He just needs my cough to ease off ( due to the probs with anaesthetic ). Has anyone taken these ( sorry I have forgotten the name of them and I am at work so cant look )

Otherwise, has anyone any other solutions ?

I really hate this condition as I suffer from other problems that stop me walking etc and the breathing is very difficult lately as I dont feel the morning Inhaler does enough ( I do have Ventolin also but that doesnt ease the cough)

Any advice would be muchly appreciated !!

Thanks, Paula

11 Replies
EmmaF91 profile image
EmmaF91Community Ambassador

Hi! Sorry to hear you've had a rough time of it! Sounds like they've suggested montelukast (generic name)/singulair (brand name). I've been on montelukast for a year or 2 now. Only side effect I had was lucid dreams for the initial few months before they faded off. I found I would 'relive' what ever I had been watching on TV before bed but knew I was dreaming so got into the habit of watching comedy pre-bed not game of thrones etc. Otherwise it's been fine with me. I know others however with whom it didn't agree, I can only suggest try it (as it's been suggested) and see how you feel...

Hope that helps x

Paula1602 profile image
Paula1602 in reply to EmmaF91

Oh many thanks for that, yes those are the tablets - also I do tend to watch Game of Thrones before bed, but its the last episode this week so I will go on to something milder !! I am starting on Friday ( as I am testing over weekend when not at work ) - do they help your cough though?

Thanks, Paula

EmmaF91 profile image
EmmaF91Community Ambassador in reply to Paula1602

Initially I think it may have helped my night symptoms (I was waking up to cough a couple of times a night and then I was sleeping through) however not sure how long that lasted... my asthma has changed from 'normal' to 'severe/difficult' slowly since Sept 15, and my body seems to adapt to drugs quite quickly leading to a need of higher doses etc.

Hi Paula1602 hope your ok I've been on montelukast 10 months and would be without them now I very rare cough and brilliant for my dust allergies good luck x

Hi Sarahjane

Many thanks for the reply - I tried montelukast for 5days and felt terrible, my cough got much worse, I had mouth ulcers, I had back ache and headaches - I gave up and contacted my nurse as nothing seems to help me. I just wish I could use inhalers that dont cause mouth infections ! I will see what my nurse says, thanks, Paula

Awwww good luck 👌

Hi I've been on these tablets for about 2 years and never had a problem with them they only annoying thing I was told was to take them literally as I go to sleep as moving around after taking them stops them working (not sure if that's true so if anyone knows if this is true would be great to know ) which Is a bummer if you need a wee 10 mins after taking them try them like I say I've never had a problem but everyone is different :) x

I am in a very similar situation I have brittle asthma uncontrolled I have had 2 intensive care visits in the past 2 years I have the same problems with oral thrush night time symptoms so I take symbicort 200 twice a day i to have ventolin but when I was in intensive care the physiotherapist was amazing she explained to me that I struggle with dry lungs when I have my attacks so she suggested to nebulise distilled water when it is bad which I do and it helps I have also been on montelukast for over a year and I can say I have not had any side effects I am numerous other medications including pain medication as I suffer chronic pain I can only speak as how I find things hope this helps and as for the oral thrush I am under a consultant for mine and I have had it for 2 years and now have scar tissue on my vocal chords so I won't ever get my proper voice back which I have found hard to deal with because I can speak one minute then nothing happens the next but if I had been there earlier maybe they could of sorted the issue quicker I had a biopsy of the thrush done and I am on very high doses of fluconazole pretty much most of the time over past 6 months hope all of this might help and to know your not the only person going through this helps in its self

Hi! I have found that rinsing and gargling with plain water after each puff on the inhaler helps sore mouth and hoarseness. I swallow the rinse water to benefit from residual steroid inhalant. I then clean my teeth, spit but don't rinse (advice from dentist to maximise fluoride effect).

I see that you all know what kind of Ashma you have ! No one has explained why I have this condition so late in life - I was diagnosed with bronchiectasis - Asthma wasnt mentioned initialy !. I know have found out by my Nurse ( who is brilliant) that I have undiagnosed Ashthma which has cause the Bronchiectasis - I dont know what type of Asthma I have - I need to look into this more - 4 years down the line and my condition is much worse than before -maybe I will just chuck all my inhalers etc and see what happens !!!!

I know this may sound like quack medicine, but it's not! If you see you have oral thrush, buy a good probiotic capsule and mix with water and gargle with it three times a day. This has always made my thrush go away. The last time I had just very mild thrush and I had kefir in the house. I drank Kefir and just kind of let it sit in my mouth and throat without rinsing with water and just before bed. The thrush went away again. I hope that works for you!

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