I am new here and was really just seeing if anyone had any advice or guidance for me, I do understand this is just advice and I am under the respiratory team and my doctor for treatment.
I am 47 year old female was diagnosed with adult asthma at the age of 22, but have always suffering with my chest as a child with constant bouts of bronchitis, whooping couch and had pneumonia.
I have lots of other health problems, and up to a few years ago my asthma was managed very well by myself only ever needing the blue and brown inhalers.
My health has got extremely poor over the last 5yrs I won,t go into all the boring details but I have severe gastric issues which include an ulcer GERD and hiatus hernia, and an auto immune disease, so I guess as I can not fight infections so easily, this may have caused my asthma to get worst.
My triggers are definitely summer, heat humidity and allergies, for the last 3yrs I have got an upper respiratory infection that has triggered severe asthma and I have ended up with trips to the hospital and courses of prednosiline.
My asthma has been extremely poorly managed I have never had a review or been refered to the asthma clinic until this year where everything suddenly changed.
I got my normal upper resp infection I was refused steroids by a locom doctor who refused to believe it would trigger my asthma, 4weeks later I collapsed and ended up in hospital with restricted lung capacity and what they now call severe brittle asthma and CVA plus infection, I was treated in hospital nebulisers steroids intravenous ect, sent home with 60mg of pred, to taper down, and then my problems started I tapered down the steroids as instructed, took 4weeks came off them and within days extreme coughing and couldn't breath or function, could not sleep as coughed all night this was so severe I damaged ribs!!
The respiratory team put me back on 40mg of pred, but my immune system started to break down, and got internal bleeding as the steroids aggravated my ulcer, so I have come off the steroids, I have been put on a new inhaler fostair and my blue one and montulkest at night.
The respiratory nurse I saw treated me like an idiot when I suggested that I could perhaps try a very low dose of pred daily which may help the asthma but not have all the side effects I get on the higher dose, but she was adamant this Is not a treatment plan they offer, even though I know people that do take 5mg ect.
When I am not on the pred I cough all night not a wheeze just an itchy irritable cough with dry throat and catarrah that is impossible to shift, if I do dose off I wake up choking and gasping for air its so scary, I am seeing my own GP next week and my respiratory nurse on the 12th September but would love to have some advice or other opinions to take with me.
thanks in advance x