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Tracey1972 profile image
29 Replies

Just thought I would pop by and say hi to u all I'm feeling better lungs not perfect but being good hope everyone else feeling good take care

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Tracey1972 profile image
Tracey1972
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29 Replies
Karjade profile image
Karjade

That's good news Tracey xxx

Kitten-kat23 profile image
Kitten-kat23

So glad you're having a break with your lungs. I hope it lasts for a while. Hugs x

WheezyAnne profile image
WheezyAnne

Great to hear you are feeling better. I am struggling this week, because I am so allergic to grass pollen. I have also been put on a maintenance dose of oral steroids as well as my antibiotics. Could be worse. Peak flow 140. Hate it. Will be speaking to the Community Respiratory Team tomorrow.

Jenzzie18 profile image
Jenzzie18 in reply to WheezyAnne

140 that's low what's your usual? I'm struggling too this week. Mines at 190 best is 550. Xx

WheezyAnne profile image
WheezyAnne in reply to Jenzzie18

You need to get that low peak flow immediately looked at if your normal is 550. How are you feeling?

Tracey1972 profile image
Tracey1972 in reply to WheezyAnne

I've never hit that , yea not to bad but puffy but a lot better than what I was need to get it sorted going the rbh for clinic on 21st and they b keeping me in and I trying to stay out of here till my due date 13th July but we will c how r u doing hope u ok x

Jenzzie18 profile image
Jenzzie18 in reply to WheezyAnne

Yeah somewhat rough. Bad experience at local a&e this weekend so putting off going back. Am waiting on my consultant to squeeze me in this week. Not been good for some reason. Xx

Tracey1972 profile image
Tracey1972 in reply to WheezyAnne

Oh no sorry to hear hope u get sorted hay fever horrible this time year my eyes been bad this year and the chest , I'm stuck on 40mg my maintenance dose should b 20 but not seen that in a while my peek flow 280-300 not to bad good day 400 normally c that when I'm on IV hydrocortisone then it's goes wild I go in for that next month so my lungs b happy again hopefully the last few times I've had it doesn't seem to work so well so will have to c my asthma nurse rings by me on 22nd for catch up and check to c how things going x

WheezyAnne profile image
WheezyAnne in reply to Tracey1972

They put me on 20 mg, until I see join the Respiratory/Immunologist Team in 3 months. The Difficult Asthma Clinic have given up on me, I think.

WheezyAnne profile image
WheezyAnne

Around 200 - 220, but mostly 180. I have had Severe Asthma all my life.

Jenzzie18 profile image
Jenzzie18 in reply to WheezyAnne

Ah ok. I've had asthma all my life but only been diagnosed as severe in this last year. I am on 40 mg of pred at the moment and have been for a year. This level is all a little new to me. Such a pain and limiting at the moment. X Hope your ok. Xx

Tracey1972 profile image
Tracey1972 in reply to Jenzzie18

Oh bless u I had asthma as once I was 12 months old then caught ammonia in 2008 and diagnosed with severe brittle asthma mines just got worse had lung surgery last year. Thermoplastic but made me worse since had it done lived in hospital wish I never had it done. Some people it's been brilliant I one of the unlucky ones x

Jenzzie18 profile image
Jenzzie18 in reply to Tracey1972

That sounds awful. Really sorry. It is so limiting at times. Here to chat if you ever need. X

Tracey1972 profile image
Tracey1972 in reply to Jenzzie18

That's u to yea can b hard some days I find walking hard get so out of breathe got to stop all the time takes me ages town only ten min walk if that takes me a hour some days live along the road form it literally but seems like a hike but I do it most days I make myself go for a little walk keep me active I might have a coffee with a friend look in shops then take another slow walk but I enjoy it even though it wears me out x

Jenzzie18 profile image
Jenzzie18 in reply to Tracey1972

I know what you mean people keep saying to me you shouldn't be at work stay at home rest etc. I just can't coup myself up all day. It would drive me crazy. X

Tracey1972 profile image
Tracey1972

Exactly that's y I try to do what I can and make myself do it I would like ve a little job but I wouldn't hold it down I used to work but asthma took that a way I went to college few years back and was training to b a teaching assistant but the bugs the kids had I picked up and was bad so went out window so done my maths , English , computers that's was good had a lot of time off but they understood been looking in line and c if any courses I can do online so can do at home away from the bugs x

Jenzzie18 profile image
Jenzzie18 in reply to Tracey1972

So tough to have to live your life around it. I am so hoping that St. George's will help. I have been started on xolair fortnightly injections which have helped but lungs still so twitchy. X

Tracey1972 profile image
Tracey1972 in reply to Jenzzie18

Touch wood they might help u I go to the royal brompton there lovely there helped me big time wouldn't b without them now go in every two months next July my lungs b needing the hydrocortisone by then x

Jenzzie18 profile image
Jenzzie18 in reply to Tracey1972

I have another friend who goes in for that at royal brompton every couple of weeks. Not something they have suggested for me as yet. We shall see. Xx

Tracey1972 profile image
Tracey1972 in reply to Jenzzie18

I might know her got to know a lot of people up there they on about being m mine forward as it's not lasting the two men than on about monthly c if that makes a difference x

Jenzzie18 profile image
Jenzzie18 in reply to Tracey1972

Hopefully it will help if that's what you need x

Jenzzie18 profile image
Jenzzie18 in reply to Tracey1972

Her names lottie. She's lovely. Xx

Tracey1972 profile image
Tracey1972 in reply to Jenzzie18

The name doesn't ring a bell but I not good with names lol I'm better seeing them I will look out for her when I'm in next

Right I going to try and get some sleep got take son for hospital appointment tomorrow morning so need some shut eye not that I will get mush on ever do but will try as tired. So night all. Sleep tight. X

Jenzzie18 profile image
Jenzzie18 in reply to Tracey1972

Night. Thanks for the chat. Xx

Tracey1972 profile image
Tracey1972 in reply to Jenzzie18

Anytime Wellcome and u take care x

Jenzzie18 profile image
Jenzzie18 in reply to Tracey1972

You too. Xx

Redhots7 profile image
Redhots7

Tracye, wahoo, so glad you are getting a little break !!! 😘

Asthma-girl profile image
Asthma-girl

That is good news Tracey.

Peldypix profile image
Peldypix

Good to hear that.

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