Hi, hoping people can relate to my story!
My daughter is 13 years old and has had Cronic asthma all her life, she has an emergency care plan for when she goes to hospital as she can deteriorate quite fast.
Up until this year her asthma has been really well controlled and she races karts, goes to the gym, plays football etc.
In January this year she got scheduled infection which left her in a lot of pain, the doctors said it was muscular for ages and sent her home but then she had an asthma attack which was so severe she ended up in intensive care with Pluracy and fluid on her lungs. Following intravenous antibiotics and steroids we were allowed home 2 weeks later. We were home for 2 weeks before an asthma attack put her back in intensive care again. That was February this year and since then we have had 4 more hospital admissions with the longest being 3 weeks.
The issue seems to be the fluid on her lung that builds up then causes a low lung function andan asthma attack. The hospital say she needs a CT scan but want to wait till her chest is clear before doing it but her chest doesn't seem to clear. Her last hospital admission was 2 weeks ago with 40% lung function, they gave her a load of steroids and antibiotics and sent her home after a few days. We are 5 days at home and she is again coughing up phlegm so and looking pale we are taking her back tomorrow. This has been going on since the beginning of the year and we are no further forward and don't have any answers. I just don't know what to do but we can't go on like this. We have missed almost 5 months of school and she any do sports or racing or go out with her friends, we are meant to be going on holiday in June but not sure that will happen.
At the moment I am thinking of referring her to try and get a second opinion.