Hope you're all enjoying the bank holiday weekend?
So my asthma is brittle/severe (depending on which dr you speak to but I have symptoms everyday and severe attacks regularly. Am on 40mg of steroids, fostair, qvar, montelukast, aminophyline, home nebs etc etc just to give you an idea)
Its been worsening for 3/4 years (probably longer if I think about it properly but the 3/4 years it impacted massively on life) I see a consultant team in my home town and in Portsmouth, so my gp is not really allowed to play with my meds to much, however it's another month until I see either team. My symptoms have suddenly worsened this last month not like an attack as such but just no relief from the crackley, tightness and breathlessness at all even with 4 hourly nebs. My gp has given me two lots of antibiotics and had bloods done once they made no difference but no infection markers showing. He and I have tried relentlessly to get through to one of my consultants but not having much luck.
My gp said he thinks if I'm not showing improvements by Tuesday his only option is to send me to the hospital for them to admit me in the hope I get seen by the local team and they will get through to the Portsmouth team. I'm guessing partly because I hate the hospital so much I don't go unless I'm having the immently life threatening form of attack (so I'm there about 8-10 times a year) but I feel bad. Like I'm going to be taking a space for no reason other than to get to see the right person. My symptoms are bad, I'm not stupid I know just putting clothes on shouldn't take half an hour and leave me in a state like it does. But because after a bit I can speak in sentences and stuff I know I'm not at attack level if you get me?
Under usual circumstances I can't do much or walk further than a few metres but this is a whole new level, and I'm worried it's my become my new baseline. But if it has then should I waste people's time allowing myself to be admitted? I can't work out if I'm being rational or not to be honest. I think I just need someone to reassure me about any of it. My husband tries but if it was up to him I'd have been in hospital weeks ago and my family and friends just worry so I feel a bit like I can't really pour it out to anyone like I just have. So sorry it's happened to you guys.
Thank you for reading if you got this far.