Currently in hospital but despite this my asthmas woken me at witching hour (for me usually between 3.30 and 4.30). When I'm really bad I often find myself waking for rescue meds between 12.30 - 1.30, as well 3.30 - 4.30, no matter how bad I'm feeling (in the past have woken at 4, both with just a v. mild cough, and with full blown red zone attack). Just wondering if anyone else gets this? I get surprised now if I wake up not at these times (say 5.30 instead!)
On the other hand (and feel free to stop reading as this is more for a de-stressing rant!!!!), had a really bad/frustrating a&e/AMU experience on Wednesday/Thursday. So I had seen my GP on mon/wed (and spoken to asthma uk wed), and been diagnosed with a moderate attack mon (started on sat had home neb mon/tues) and was having a severe attack Wednesday. Because this is almost normal for me now we came up with a plan to give me the best chance of staying out of hospital. Ended up having 3 nebs by 1PM (and upping my pred from 30 to 40) then tail off of vent (6 puffs in 2 hrs, 4 puffs in 2 hrs etc) with the whole - drop into red zone take a neb (I have one at home) and if this doesn't last go to hosp for further treatment (for hydrocortisone/mag sulphate etc).
Low and behold needed a neb at 6PM and by 8.30 was back in red/black (33%) so gave in and went to hospital (with a sheet explaining my diagnosis, medications, allergies, prev recent a&e visits and admissions etc) and quickly wrote them what had happened since the weekend when it all started, plus the meds I'd had that day so far (4 nebs and something like 26 vent). Saw a HCA for triage, and because I was red zoning (and scary BP(160/99)/HR(156) ) he stuck me straight on back to back nebs (sal + atro) without anyone listening to my chest and no doc heard my really audible wheeze. Didn't see any doc until I'd been there well over an hour and had finished the nebs. For the nebs I was put in what was in essence an overflow bay in minors, with no staff in the room and only the occasional person walking past.
Eventually saw a new JDoc who basically didn't know how to deal with me (no judgement on JDocs love you guys ☺️) PF in yellow zone and still coughing like no tomorrow. She listen to my chest (through 3 layers of clothing - 2 of them thick - it was cold but when I offered to take them off she refused!) and told me I have no wheeze (1. Wheeze is always my last to appear, first to disappear symptom 2. Genuinely don't think she would be able to hear it if it was only mild!) so she thought I might be able to go home. Told her my habit of dropping quickly before 4 hrs is up, so she spoke to her senior, then I was left for observation (still mid of my yellow zone. again I was alone in an out of the way bay with the advice to get help if I get worse 🙄).
2 1/2 hrs later I'm back to red zoning so have to spend 10 mins finding someone to help me, see JDoc who puts me on another neb, and spends time tracking down her senior for advice (it's now 1.30am-ish) and at 2.15 (neb finished back in mid yellow) she talks about how out of the way I am so she was gonna see if I can sit in a chair in majors. She leaves and triage HCA comes back and says they've found a bed for me (I assume majors cause still not really controlled and JDoc said that was where I was going with the plan of escaping/getting more treatment if needed). Sit in a wheelchair in a corridor for 15 mins whilst they find my notes, then they take me to AMU (I'm like so I'm being admitted then, thanks for telling me 🙄). Never saw anyone but the HCA and JDoc and I knew the treatment I had wouldn't last cause it's what I was already doing at home... (I can forgive the JDoc as she had only just started and she told me at least 3 times she didn't know what to do with me and was seeking further advice from SDoc)
It's now 2.45AM thurs and I'm transferred into AMU (acute medical unit) and I'm going through processing, explaining everything again, getting obs etc. They're now confused as no ECG asked for so later on they make me do postural BP (lying down, then standing - massive difference with 118/80ish laying, 156/98 standing) no explanation given for why they wanted it or what it meant (knackered by this point so didn't ask). Fine I deal with this, 4.30 by the time they finish, and leave me to sleep get 50 mins interrupted before I give up (cause first couldn't get to sleep, then ward noise then symptoms worsening) by 6.30 I'm defo in red zone, tell nurse who lets the doc know. I struggle and wait. 8AM breakfast which I can only slowly eat, now heading to black and all symptoms back nurses can hear me and report it. 8.30 PF at 30% I'm trying to relax to calm it all down (v good at not panicking/stressing too much as I've been there multiple times) and the amu consultant doc of the day comes to see me (they switch daily and can be from any hosp department). She asks me how I'm feeling, I tell her like 💩, she tells me that I can't be that bad cause I'm dressed, (only clothes I had with me still in them from a&e) sitting up in chair (cause I'm really gonna lay down in a bed when I can't breathe 🙄) and smiling (my coping mechanisms I've had since a child).
She listens through all my layers, says no wheeze (which I can feel/hear in myself!), therefore I'm just anxious (ignores me telling her I'm black zoning, SoB, coughing, can't breathe out, tight chest etc) and stops all my nebs and lowers my pred back down to 25 (from 40 - had been on a weaning program and been at 30 and had 5 days of attacks of varying severity)! I'm now tired, frustrated and starting to stress cause she's not listening! She tells me I'm good to go home after resp nurse sees me (I'm like, like hell I am- if she had discharged me then I would have gone straight back into a&e to the day staff which knows me!).
Wait another 2/3 hrs for resp nurse (luckily get PF back into red due to natural changes in the day and me using all the tricks I know!) and get to watch the same doc cock up on a COPD patient, stopping her o2 cause she blamed the sob on her heart. This patient was on continuous 30% o2 at home. Not too surprised when she rapidly declined and the nurse started o2 again against orders to get her sats back up to 88 (they had dropped to 75%!). I see pharmacy (who know me) who are majorly surprised/slightly concerned at the plan given to me meds wise and are looking at me like they know I'm in a bad place. Finally see resp nurse who looks at what's going on and listens to what I'm telling her, and tells me that she's not happy that I'm red zoning, and that she doesn't think I'll be going home but with check with my resp consultant first. AN wants me back on nebs immediately and ups my pred back to 40! I'm finally happy cause I've been listened too! (Eventually get put back on uniphyllin too)
Back to yellow zone after neb and feeling better again (this is where I have been sitting for months - when I'm doing well I bounce in/out of green, when doing bad bounce with red). See AN again who tells me I'm staying until I can maintain green (or at least high yellow) without meds and that she'll transfer me to the resp ward (3rd time there in 5 weeks - they also know me really well!!!).
Saw the AMU doc a few times in passing before I transferred but was so angry I couldn't look at her! I can't forgive a consultant who completely ignored me and my symptoms and just told me I was anxious (no 💩 Sherlock when I have you as a doc!). Got the impression she didn't know/care about resp conditions and preferred cardio! Now being passive aggressive about her with the ward staff, my AN and will be when I see my consultant- if she's that anti-resp she shouldn't be on AMU!!!
Whew! If you've stuck with me til the end thanks for listening and I hope you never have to go through what I just did! If I was less confident or less aware of my condition I could have been in serious 💩 if I had been released! Even now with 4hrly nebs still in yellow and have only hit green once. Heart is also concerning nurses at have v high BP and pulse and getting chest pain (related to heart) when I'm having a neb.
Rant over! Thank you for your patience!!! 😁 Feel free to rant back!!! X