I am new to this website.. a little bit about me and my son.. my son turned 2 last week. He was unofficially diagnosed with asthma around 1 year and his consultant officially diagnosed him with 'infantile asthma' when he was around 18 months. There is no family history of asthma. Today, his consultant informed us that he is very unlikely to grow out of his asthma, due to the severity of it over the past two years.
A bit of background.. he was first hospitalised with bronchiolitis at 4 weeks.. he got it again a few times and was hospitalised with nebulisers and antibiotics each time. He started on inhalers by about 10 months (I think, that time was just a blur!). He has had to have oral steroids (pred) over the past year (they refused to give him oral steroids before about 10 months due to side effects) well in excess of 20 times. Luckily only a handful of hospital admissions since then as I mainly manage his symptoms at home once I get antibitoics and/or steroids from his GP or out of hours. Many a night we have spent him sleeping on me while he coughs and wheezes away.
His triggers seem to be any viral infection (cough and cold) which is made worse by cold air. He is also very susceptible to ear infections.
I separated from my husband 9 months ago, largely part to the stresses of caring for our little one. As a result of frequent asthma attacks and such a frequent need for medication for chest infections our little one has never ever slept well. Now that I know he won't be growing out of it I am looking for other sources of support.
I am wondering if any other parents out there have little ones with asthma and how they cope??
Thanks! S xx