Hi I'm Dannii I'm 34 live in Wales I've had asthma since a very young age and until 2 years ago it was perfectly controlled I suffered with the odd chest infection but managed it perfectly well with just 2 pumps.
In October 2014 I was admitted to hopsital and was diagnosed with double phenomena I was in high dependency for a while then moved into the ward for 3 weeks since then I've been admitted to hospital almost every month and stay for a total of between 2-4 weeks at a time. (At one point I was expecting them to start charging me rent)
My asthma is not controlled at all now, I am on almost every medication going I take 24 tablets a day along with morphine for pain I'm on 50mg of prednisone and have 4 pumps, I have 2 nebuliser at home one next to the bed and one in the living room and one that I can take with me in the car. I had a sleep apnea test done in September but still waiting for the ressults! My consultant keeps cancelling the appointments I'm now booked in for October!!!! I see the asthma nurse at the hospital every month .
Every day is a struggle I am in constant pain in the back I get breathless when talking and now I'm house bound as I cannot manage to stand for long or walk further than a few steps without requiring my nebs
I have been told I have brittle asthma I am so down and depressed and haven't been able to work in over a year and half. Due to the steroids I now have glycoma and have to wear glasses all the time I've put on so much weight It's just a vicious circle. I feel like giving up most days the pain is unbearable and the doctors think I have fibromyalgia on top of everything else.
I feel like no one truly understands how hard it is to fight for every breath my partner has been amazing and without him I would have given up a long time ago
Has anyone here had a similar experience I'm thinking about asking to be reffered to a new consultant as mine doesn't seem that fussed on helping me.