I am new here and am not sure I am even on the right forum as I dont know what my diagnosis is. The doctor has given me a vague ''respiratory allergy'' tag which I am confused by and I don't even know what I am allergic to.
I am really hoping someone out there recognizes my symptoms and can point me in the right direction.
2 years ago I caught a very bad chest infection. I eventually kicked it with antibiotics but remained wheezy and full of flem for many months after. Doctor gave me more antbios but they didn't work. He then sent me for chest xrays and scans but all came back normal. I carried on wheezing slightly and my chest was a bit tight with some mucus. But I lived with it for many more months hoping it would pass. After the cold itself had passed, the tightness felt more managable. But then I caught another simple common cold and my chest went into overdrive. Plenty of unmanageable wheezing, difficulty breathing, coughing, and tightness. I couldnt exercise as that triggered my tight breathing and led to panic and often hyperventilation. More antibiotics from the doctor, kicked the cold and reduced the chest symptoms but the wheeze never ever went away. It just got more manageable after each cold infection passed. I return to exercise and everything feels kinda ok ... til i get yet another cold and BAM... i start to become really tight in the chest and am wheezing so bad i cant breathe . It makes me cry because i get really scared. This has happened on and off for over a year. The doctor gave me a peak flow test and checked my oxygen levels. All were normal. He ruled out Asthma. Xrays are all fine. So why am I getting these recurring episodes every few months where my body behaves as though i am having an asthma attack whenever i catch a cold? Doctor says it could just be a ''respiratory allergy''.
Doc eventually put me on 10 days of Prednisolone. Miracle. After a year of struggling to breathe on and off, it completely and totally cleared up the wheeze and tightness. I can breathe again. I was so happy. I started to exercise as normal and my panics stopped. Everything was fine.
Doc said it was DEFINITELY an allergy and seemed quite happy with that diagnosis. The prendnisolone kicked it.
However skip forward a few months, i get another cold and then all the horrible symptoms return. Bad wheeze, cant breathe, feel like an elephant is sitting on my chest all day and cant exercise as any rise in my heart rate triggers hyperventilation as i gasp for air. Its really frightening. Doctor gives me a second course of Prednisolone. And again.. miracle.. all the symptoms go. I am happy again.
This happens on and off a few more times until finally, today, we have come to the end of the road with Prednisolone. I caught a small cold last week that has triggered another massive constriction of my chest. So much gunk and coughing and huge difficulty breathing. Peak flows and oxygen fine. Doc says I cant take any more Prednisolone as have taken the maximum recommended for the year so far.
he wants to put me on an inhaler - Clenil modulite. I said how long for? he said forever!
The stress caused by that prospect has brought me to this forum. I couldn't sleep all night as i really struggled to breathe and was extremely panicked, and i didnt want to go on anymore steroids. Especially as the doctor doesn't seem to really know whats wrong with me. I dont seem to have any definite diagnosis. All I know its not asthma, its an allergy.
Does anyone recognize this pattern in symptoms ?
Is there an alternative way to treat them without being permanently on steroids?
Is it worth getting referred to an allergy clinic and getting a proper diagnosis? If its a specific allergy, maybe i could avoid the triggers?
i just want to do everything I can to heal my problem without taking anymore steroids because i get so scared to take them. I find it deeply distressing to take any more. It upsets me because I have a relative who reacted so badly to steroids and I dont want to go the same way. I did actually take 10 puffs of my new inhaler last night (too much by mistake) and i was so anxious about it that i had a full blown panic attack. That is how distressing I find taking steroids.
I would be so grateful if anyone knows how i can go about getting a proper diagnosis and if can go about treating it in a more holistic way?
thanks so much