Hi all i've yet to have any official diagnosis but after becoming very ill at Christmas i've been referred to chest specialist but typically with the NHS the earliest appointment is in June. I'll share my experience and would appreciate any help or advice to stop me worrying and panicking!
About a year ago I started getting breathless and wheezy with palpitations. I put it down to my underactive thyroid only diagnosed 6 months previously. It seemed to get worse. GP first said hayfever but antihistamines didn't help. It carried on until just before Christmas the GP suggested possible asthma gave me a blue inhaler and PF to start monitoring and to go back after the holidays. Within two days got a cold, chest getting worse.
Long story short I ended up in hospital in ITU in an induced coma for 14 days. They suggested an acute asthma attack along with acute pneumonia and a superbug to top it off. All in I was in hospital for over 4 weeks and am still signed off for another few weeks. 6 days after I was discharged I went downhill suddenly again couldn't breath and wheezing with the normal 2 puffs of inhaler not touching it. I narrowly escaped being readmitted but on strick instructions to use 10puffs every 2hrs and steroids (30mg?) Straightaway. My usual GP followed this up a few days later and prescribed steroids for longer as well as a new brown inhaler 2 puffs morning and night.
I've now nearly finished weaning off the steroids with a lower dose every 5 days but to continue using brown inhaler indefinately on gp's recommendation.
I'm concerned as both the consultants in ICU and the out of hours gp as well as my own gp have mentioned something called brittle asthma due to how suddenly and severely it came on?
I'm petrified of it happening again which is stressing me out which obviously makes it worse! I've already noticed i'm getting a bit breathless again at times which i'm assuming is down to the reduced steroids. Is it normal to be breathless often? Is brittle asthma different to 'normal' asthma? Can you have both? Is there anything I should be doing that may help?
Sorry for the essay but just looking for some reassurance as I don't know anyone with asthma to chat with. Tia☺