I have severe brittle asthma and coupled with that hyperventilation syndrome and dysfunctional breathing due to long term asthma . My consultant is fantastic and I could not ask for better support but some of the attitudes I get from on call Drs in hosptail is very different . BECUASE I am not a text book case they seem to think that I am exaggerating my symptoms because the sats monitor shows good readings however this has alaways proved a problem and when gases are actually taken it shows me Bing hypoxic. I know sometimes It is more the other conditions than the asthma but I try to manage then aswell but sometimes need help just like I do with my asthma . The attitudes of some health professionals can be really judgemental and upsetting am I the only one that gets this. I have now Ben in hosptail for nearly 4 weeks and am still on AMINPHYLLINE infusion , optiflow oxygen and regular and PRN nebs plus 50 mg pred .
It is just so upsetting when you know your body so well that you know when things are not right and no one is prepared to listen , the only one who does is my consultant ! - abd now he's on a weeks A/l
I'm left feeling lonely and frustrated abd even quite angry - yesterday I was spiking temps of 38.2- 38.9'all day but bloods came back ok except awaiting cultures but no raised infection markers - I was on antibiotics but the micro biologist has stopped them - but no in again has explained why , 😡😡😡😡