Hello all

I am a severe asthmatic patient who has responded well to xolair. I was on a monthly dosage of 225mg every 4 weeks with IgE of 340. Was on it from March 2012 to March 2014. I stopped it myself as I knew I had underlying issues but every medical team I dealt with put it down to steroids (which I came off January 2013) or Xolair.

I know it wasn't Xolair so came off it myself to prove my point. So I was off it from March 2014 to September 2014. It severely affected my asthma and I got admitted from 1st August to 9th August. So I was off the xolair for 6 months.

They re-tested my IgE which came back at 738 so dose got changed to 450mg every 2 weeks. I want to go back to monthly but I keep getting told that the guidelines dictate you need to be on fortnightly.

I am sure I can go back on monthly with previous numbers but I need some medical evidence from medical journals or articles.

I have a consultation with my main asthma doctor and want to be fully prepared with medical evidence so he can't refuse me.

Also initially I was booking it monthly without the old asthma nurse realising and I responded really well, I have tried to book it monthly with this new asthma nurse but it doesn't always work.

In my opinion if it works monthly and I'm responding well, I should have it monthly and save NHS money as opposed to having it fortnightly when I don't need it.

Thanks for any help/advise.

Also sorry for the long post.

Nimz x

2 Replies

  • You'll find articles on pub-med. just search for xolair.

    Do you have loads of side effects if you take it every 2 weeks?

  • If you phone the helpline during office hours they will be able to help you .

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