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serious long term - deteriorating illness's

JohnnyBronchoHirst profile image

ill since - aged 3 - ASTHMA/BRONCHITIS / PHENOMENA -- NOW 61

APPROACHING CRITICAL - BRONCHIECTASIS - CHRONIC BRITTLE ASTHMA - HEART FAILURE 30% CAPACITY ONLY - DIVERTICULITIS - SPINAL DETERIATION / DEGENEATIVE BONES - DEEP DEEPRESSION - KIDNEY DECEASE - OXYGEN RELIANT - STEROID DEPENDENT -

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JohnnyBronchoHirst profile image
JohnnyBronchoHirst
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12 Replies
freefaller profile image
freefaller

Oh Dear man you have a lot to put up with. How do you cope? Bless you.

JohnnyBronchoHirst profile image
JohnnyBronchoHirst in reply to freefaller

POORLY AT THE MOMENT - When stronger i will share more

freefaller profile image
freefaller in reply to JohnnyBronchoHirst

Hope you feel better soon.

Sian

xoxoxo

Asthma-girl profile image
Asthma-girl

You poor thing, I do hope you start to feel better soon.

Take care.

I8tories profile image
I8tories

Got many of your symptoms myself. Steroids have kept you and I going for many years, but the side effects like ostioporosis, type 2 diabetes, hips and knee problems, skin thinning, causing very easy brushing and breaking skin, bleeding. Done many things, I could not have done, without steroids.

Look on the positive side of life, as Monty Python song in Meaning of Life film, ALWAYS LOOK ON THE BRIGHT SIDE OF LIFE. My philosophy, make it yours.

Kev

JohnnyBronchoHirst profile image
JohnnyBronchoHirst in reply to I8tories

Yes - All of those and more - 61 now - Been on Steroids for 50+ years

They have on many occasion's saved my life

JohnnyBronchoHirst profile image
JohnnyBronchoHirst in reply to I8tories

You are spot -on - Will be in touch when a little stronger

Take good care of yourself

John

Karjade profile image
Karjade

Have you got good support around you? Family, GP, hospital, etc. I can't begin to understand how you are feeling but we are all here for you xxx

JohnnyBronchoHirst profile image
JohnnyBronchoHirst in reply to Karjade

Total support / 4 Consultant's with there reasourses behind them

Wonderful. GP. And Community. Nursing Support Team / Had too work hard to get it - And retain it

John

JohnnyBronchoHirst profile image
JohnnyBronchoHirst in reply to Karjade

Thank you

It's a good site - only found it last week

Thanks for your support already - YES. IM FORTUNATE TO HAVE A WONDERFUL COMMITED SUPPORT NETWORK - But possibly like you - I/ we have had to work at it hard to maintain

Best Wishes. John

I8tories profile image
I8tories

Managed to keep my independence. Got cleaner comes in once a week, shopping delivered. Sold House, bought bungalow, far better. Had lot of work done, all wooden floor, no carpets, dust.serious allergy, steps from new patio door to large patio. Raised garden, made out of old railway sleepers.

Bought mobility scooter, large, long range one, 30 miles, as not permitted to drive, on medical grounds.

All these give me quality of life, would not , otherwise have.

Triggerina profile image
Triggerina

I have a few of these but not as many. Rooting for you. X

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