Tell us about your asthma care

Despite how serious asthma attacks can be, last year 8 out of 10 of you told us that people with asthma were not getting care that met the most basic clinical standard. We want you to tell us, has that changed?

Last year we used your results to help campaign for a national clinical audit in England and Wales, which will help improve care in all nations across the UK. We now need your help again.

Please tell us about your asthma care so we can use the results to raise awareness of how serious asthma is and continue to campaign for better care. Can you spare a few moments to complete our survey? It should only take around 2 minutes.

The survey can be found at this web address: surveymonkey.com/r/V7FX5GJ

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  • I have had asthma for around 4 years. I take pulmicort and bricanyl. I have been doing fine until recently when the flat got turned unside down to get it rewired. There was a lot of dust disturbed. I can't get rid of this cough and I keep having attacks which generally disperse but sometimes it takes hours before I feel better. I don't want to end up in hospital again as I am going on holiday soon. Is there any advice you could give me? I live with my partner who is also my carer. We live in Scotland. The doctors (glenburn health centre) have stopped giving me check-ups for some unknown reason. I feel neglected and abandoned. please help me get some fresh air. Not been out for 6 months. I also have diabetes and PA. I am obese which doesnt help. Always getting brethless. Last B12 injection was 11 months ago because they said the B12 count was 2000. Way too high.

  • I have had Ashma most of my life (I'm 46 female ) .over the last year it has got gradually worse .

    I have other health problems which I'm sure are related .I have IBS excema alergies and heartburn . These seem to flare up at same time but IBS c not good all the time .I take meds for heartburn and am also on blood pressure tablets . Last September I became ill with a horrible cough and it's still hanging around .I was rushed to hospital three times and have been on steroids and antibiotics on and off since which have not helped . I am constantly block red up with mucus and yuky stuff which I've always thought down to my alergies .

    I'm constantly tired as Ashma keeps me awake .

    The only time I feel well is if I've been on holiday near the sea and my asthma symptoms clear up

    My doctors are great but feel they not understanding how unwell I feel with all things flaring up at once which is ongoing at this time 😃🌺🌻🐝

  • Hi everyone - we're just giving this post a Monday-morning bump in case anyone hasn't seen it. It will really help Asthma UK to raise awareness of how serious asthma is and campaign for better care if you fill out our 2015 Asthma Care Survey - surveymonkey.com/r/V7FX5GJ

    It would be fantastic if you could share it with any friends, relatives or colleagues you know who also have asthma - every person who completes the survey will help us get a better picture of asthma care across the UK

    surveymonkey.com/r/V7FX5GJ

  • Salut,je demande si je peux participer avec mon expérience

  • hi iam new to this site iam andrea from bradford and ive had asthma from 5months old , iam now 57

  • Hi there. I was first given asthma diagnosis about twenty five tears. Followed on from a serious chest infection. Started on ventolin which worked well for some time. After an increase in symptoms becotide was added. Until about eighteen months ago didn't have too much of a problem, occasional steroids. More recently things have been stepped up so I now have ventolin, Seretide Montelukast and steroids every few weeks. My go is good, he knows me and listens and does what is needed. I have just been referred to a specialist, I do feel this should have been done earlier. As I have just finished steroids, on antibiotics for suspected chest infection. My asthma is completely out of whack. The asthma nurse last time I saw her said she couldn't write an action plan for me as I was too unstable. So I still don't have one. The main problem I have is if you don't see your own go, they don't know how I usually am, and ignore,it then escalates. Hope this helps

  • Après avoir marre des médicaments j'ai suivis la respiration profonde

  • Followed the link but looks like survey is now closed

  • Had asthma for 40 years. Fed up with not being listened to by medical "professionals". Asthm nurses know less r

    Than me and are not qualified to prescribe? I have led my own care by logging into thoracic society ....... GP. Stands for " generally poor". My asthma is under control for one reason!!!!!!! I educated myself and had to beg for the allergy medication I knew I needed to avoid attacks

  • Hi I've had asthma since childhood and now 55. Never saw a specialist asthma nurse until I was 40. I worked all my life in the NHS as a psyche nurse and 5/6 years ago referred to respiratory consultant. He did some tests and positive for Aspergillus and I'd had tests in my 20s by an immunologist and allergy to foods. He put me oh Prednisolone permanent for 2.5 years as well as on am off most of my life. Started xolair and after 2 years and no improvement I came off it. I had to push for CT scan and found atelectasis and ground glass attenuation. I'm now coughing up small amounts of blood, can barely walk upstairs and 20ft and now pushing for referral to larger hospital ie RVI Newcastle or James Cook. Last test showed sensitivity to Aspergillus but had 2 lots pneumonia in 3 months and just had another infection possibly due to fungal as I was px 2 lots doxy and Pred which doesn't have effects so thought ill take the itraconazole and it is now in feeling slightly better. I won't go to hospital to be told to take 10 puffs blue when that's normal daily. I also don't really get wheezy just breathless and average peak flow 260 and sats 94 good day. As I know what to do I've managed myself but no one sees me really ill with temp 38.1*.

    I feel Dr's and nurses don't use nice guidance and add on therapies or the likes of Omalizumab, Nucala and bronchial thermoplasty due to cost but there's an increase in deaths year on year.

    1,468 people died from asthma attacks in the UK in 2015, an increase of 21 per cent compared with the previous year (1,212).

    This equates to 117 people a month and despite brittle, severe, complex - we are not getting plans appropriate assessments by specialist nurses and the correct treatment but ultimately listened to. Spiriva respimat makes me cough badly and I've reacted to uniphyllin and its like no one believes you. So listen, hear and be in our shoes.

  • I was only diagnosed with asthma a year ago. Unfortunately/lucky I had pneumonia and was in hospital so had to have follow up at the hospital.

    I have been lucky that in the last 11 months I have a respiratory consultant twice and a respiratory nurse twice.

    Respiratory consultant:

    The consultant was not helpful, he did not ask me about my symptoms and on one occasion I had a chest infection and instead of giving me antibiotics told me to increase my fostair. I ended of work for a few days in the end. The only advice the consultant gave me was to stop working with people with COPD ( I'm a nurse specialist).

    Respiratory nurse:

    The nurse has been lovely, she has been the 1st that has gone through my symptoms with me however I have never been given an plan for my asthma. I was last seen in June and was struggling she wants me to see a Dr however my appointment for them isn't till the end of September.

    GP:

    Very kind but keeps asking me if I'm anxious at all as that may be what's making me unwell. I had a appointment yesterday with another gp becuase the last few days I haven't been well and using my fostair and salbutamol to the max . He told me the coughing isn't a sign of asthma !!! Coughing is my biggest issue!!!! He told me that I just had a viral infection and that I need to sleep it of (I wish I could sleep it off but I'm to busy couing non stop) He didn't check my peak flow and was trying to say goodbye and i asked what I should do about my inhalers and showed him my peak flow diary. Have one bee given prednisolone and he suddenly got concerned about me and said he wanted me to see me today.

    As a nurse and as a patient I feel:

    GP's and respiratory consultants dont't nescarly take people with mild asthma serious anough ( I have cared for 2 people who were only on salbutamol inhalers at home,that they rarely used then ended up having an asthma attack and needed to be on ECMO, ECMO is the resort.

    I have seen the consequence of someone who asthma was poorly managed have a severe asthma attack that resulted in a respiratory arrest causing severe hypoxic brain injury leaving a 23 year old in a persistent vegative state.

    There seems to be a lack of knowledge of the possible symptoms that people my experience I think these are really important.

    I have never had my inhalers technique checked.

    I strongly believe that anyone needing an ICS/LABA should not have their asthma managed by just a GP they should be seen by a specialist.

    I also want to point out that people think that they see an asthma nurse at there GP practice the majority will not be see an actual asthma nurse they will be be seeing the practice nurse who runs an asthma clinic. The have knowledge in a range of conditions but are NOT respiratory nurse specialists.

    I don't believe health professionals take into account the effects of asthma on a suffers life it is exhausting when your symtamatic and this can result in going off sick from work or effects template quality of your work as well as social isolation.

    Getting Dr's appointments is impossible if your having an excerbation of asthma you can't wait to be seen by a Dr for a few days you need to be seen that day otherwise you will end up in hospital or dead.

    I also believe that if you see a respiratory/asthma nurse you should always be given an action plan and that it clearly states what someone's symptoms are . It everyone gets breathless, chest tightness with a wheeze.

    If your referred to see a respiratory Dr by the GP or respiratory/asthma nurse you shouldn't be waiting up to 3 months for an appointment, the are refering becuase you asthma isn't effectively managed. If you had been fined with cancer you would we see a oncologist with in a mandatory time period.

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