completely fed up

I'm totally fed up because the Drs are now saying that I only have very mild asthma and its all anxiety and something else and I can't breathe deeply coz it hurts and no one listens when I say I can't breathe so I stopped saying it and now they al think I'm fine all the time when in actual fact every breath is hard. I don't know if it is asthma or not but I just wish that they could tell me what's wrong and how to fix it. Its hard at school as everyone thinks they understand but they don't and I'm just so tired all the time from trying to breathe that I can't concentrate in lessons. If any one has any ideas they would be gratefully received.

Sorry, moan over...

7 Replies

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  • Hi!

    Sorry to hear you are so poorly?. I am in similar situation. Had about 30-40 attacks this year my chest is too painful each breath is a struggle on 40 mg prednisolone at the highest level of treatment and still cannot climb up the stairs or stay at home for 2 weeks without a terrible attack which usually lands me in resus and hospital. This academic year so far I spent more time in hospital than at university . At uni they just dont understand whats going on and at the hospital the drs just dont know what to do with me. I had the physio the nurse the difficult asthma dr just couldnt sort it out. Now I am waiting to be seen at the Brompton so they will sort things out hopefully. But you might be able to get a referral to see someone or get checked for other respiratory problems like chest infection or copd maybe.

    But me too absolutely fed up and i understand how you are feeling i had many times been told its not asthma just a panic attack but after about an hour i ended up in resus so they were wrong. Had been told all kinds of things once i used an entire full inhaler in a day then went to a hospital and was given a second one to go home with and no other treatment by the time i got home was soo bad my flatmates rang the ambulance who took me to a different hospital and landed in itu . ?

    But keep trying and if the drs at your surgery arent listening to you then ask for a referral or try to change them. Also you could ring asthma uk they have lovely ideas and they can help you with things.

    Hope you get better soon

  • Trying writing to your local mp. They are useful at sending letters to prod people along.

  • Thank you so much, I sorry that you're unwell Yas but at least I don't feel so alone now that I know others are in similar positions. I am currently on low doses of meds (flutiform 125, 1pufff2x day) and I can't do any thing, walking up a flight of stairs leaves me gasping for breath but was told is not asthma coz nitric oxides was low (11) inn the one time they did it while I was on 40mg pred and had been for the past week and was feeling okay.

    I just want to feel better coz got GCSE s coming up (I'm doing 11) so lots of school work and hours of homework every night.

  • Hi

    I am at uni but same thing we got 5 days a week sometimes 4 h long experiments standing up in the lab after climbing up to the 5 th floor! Its just a nightmare. But the only difference is that i kept on top of things i kept seeing the gp sometimes x2 a week or more so i am on lots of meds. Only started wheezing recently after a chest infection and just not getting better. But generally cant even have a shower without getting breathless or wheezy cannot sleep for more than 5 h continously just a living nightmare. But i kept pestering so going to see some good cons next month but had to pester over 2 years and had to wait ridiculous amount of times and lots of complaints.

    So if you keep going to a and e and the gp then you might be able to get a referral or they might bring it forward if it is too far. Thats what they did to me . But just fed up of medicines at the moment.

    Hope you get better and that you succeed with your gcses not like me with mine i allowed asthma to ruin my career

  • I'm totally fed up because the Drs are now saying that I only have very mild asthma and its all anxiety and something else and I can't breathe deeply coz it hurts and no one listens when I say I can't breathe so I stopped saying it and now they al think I'm fine all the time when in actual fact every breath is hard. I don't know if it is asthma or not but I just wish that they could tell me what's wrong and how to fix it. Its hard at school as everyone thinks they understand but they don't and I'm just so tired all the time from trying to breathe that I can't concentrate in lessons. If any one has any ideas they would be gratefully received.

    Sorry, moan over...

    Difficulty with respiration is not necessarily caused by asthma. High blood pressure causes the heart to demand more oxygenated blood and this leads to hyperventilation or an increased rate of breathing. This may certainly lead to anxiety or even panic attacks. Not knowing what is wrong with you can cause some anxiety in any event. Other people will perhaps try to understand your plight but they would need to be in your shoes in order to fully comprehend how your condition is affecting your day-to-day life and efforts to study.

    There is an epidemic of high blood pressure and I would suggest that you get checked out for that particular condition. If your blood pressure is too high then your GP will probably prescribe the appropriate medication. You can also learn how to monitor your own blood pressure using a small device purchased from a local chemist.

    Dealing with you anxiety at times of distress is not easy but you do need to learn how. It would be helpful too if the Ph of your blood were to be checked.

  • Thanks again, Grownup70, I have had my blood pressure checked on many occasions and it has been fine. Going fro respiratory physio on tuesday so maybe that'll help.

    my sats are generally good (97 ish) and heart rate a bit high (90-120) but this is probs salbutamol.

  • I am not saying it IS anxiety: however, you could deal with the potential anxiety element (because breathing issues de facto cause some anxiety anyway), by requesting referral for CBT, which will give you some tools for separating out the two, and offering some strategies where you can reassure yourself. Anxiety has a way of spiralling and CBT can help you recognise the signs early.

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