Hi, I'm Aimee's mum, she was diagnosed in may as being intrinsic brittle asthmatic.
Aimee currently takes 2 x puffs of Seretide 125 twice daily, 5mg Montelukast, 5ml twice daily of Ceterizine antihistamines.
I have no experience of asthma, my ex husbands family have asthma, but as ex husbands go mine is probably worse than useless, so no advice or support. Aimee has been taken to hospital twice by ambulance and a separate visit of paramedics within the last 3 months.
I finally have Aimee's follow up appt with her consultant on Mon 1st September, what should I expect? Can I be fairly vocal with him? Aimee isn't at all well managed, and has a 'small' asthma attack at least once a week that we manage to get under control at home. She also seems to be experiencing side affects from the drugs, signs of aggression, sleep walking when she does sleep or insomnia, continuous sore throat and throat infections. I'm considering asking for a referral to the Royal Brompton, does anyone have any experience with them? Is she likely to get better support from a specific Brittle clinic?
I'm sorry that's lots of questions, and I've probably left lots of info out!!