I really am looking for some advice. I'm worried about my little girl
Maddie is 5, brittle asthmatic, adrenal insuficiency and aspirates.
She changed from maintenance pred to hydrocortisone in June and had massive near fatal attack. Basically her hydrocortisone wasn't strong enough. We have a fab resp consultant. She doubled th hydro immediately. (Was the endo cons who gave initial dose). Maddies asthma thankfully stabilised. However she is sooo tired!! She is weak, sleeping during the day, tired all the time. The resp cons told me to check blood sugar levels before meals which I have been. They are low. About 3.6/3.8 in the morning and the highest they get, even after a big meal and pudding is 5.2.
Her resp consultant is away for 6 wks and the endo cons I just can't trust after the last episode!!
I called the GP today who said increase protein. (Trouble is she can't eat meat as can't swallow it) Will this really sort it all out?? The adrenals are struggling surely?? The gP was kind on the phone but I feel like screaming at the moment. Maddie is so weak..just like when first diagnosed with adrenal insufficiency 3 yrs ago!!
Has anyone ever had this?? She's little so can't tell me how she feels..just says she's tired and keeps sleeping.
What can I do??