Sorry..another adrenal question from me!! After another Synachen test, maddies (aged 5) adrenals are worse than last time (not been told level this time, last time was 16!!)
Anyway she's on hydrocortisone 3-4 times a day depending on a multitude of things. Prior to her going on to this, she was on pred for 3yrs. That was simple to manage - it was one tablet once a day!!
Anyway....I can see her dip quite alot between doses of hydrocortisone and I can tell she needs the next dose. When she does any exercise, should I change her dose to accommodate this?? She seems to tire very easily compared to ther children her age. She wants to do it but her body just can't maintain the activity level. She went swimming with school yesterday and was quite poorly last night and then this morning it took her ages to kick start, if that makes sense. I've picked her up again tonight and she's wiped!!
This is how she was when diagnosed 3 yrs ago. I feel we are struggling with management..it's all so confusing yet we don't have any support from the medics. Our asthma consultant is amazing but when it comes to adrenal side, we have nothing!!
Any help would be sooo appreciated xx