My daughter was diagnosed at the age of 20mths with a persistent cough and occasional wheeze/asthmatic. She suffered with a constant choking cough from the age of 3mths (always worse at night to be told her chest was clear when we visited GP in the day)
Since her diagnosis she has been on Montelukast (stopped due to adverse behavioural reaction), salbutamol, Clenil 50 (200mg per day), upped to Clenil 100, dropped back down to Clenil 50 and Prednisolone.
This winter we have thankfully avoided hospital admissions but she has had 5-6 courses of Prednisolone.
We saw the consultant in January who told me to see the GP and ask about a long acting reliever (Serevent or seretide) if Evie's symptoms persisted in this way and also she would agree to allergy tests.
We've seen a brilliant GP who has basically told me that I was fobbed off by the consultant because due to my daughters age only a consultant can prescribe these inhalers because they are unlicensed for an under 5. The GP wrote to the consultant asking for her advice and to prescribe the above. The response was no, I don't feel Evie needs them, I would recommend putting her on Montelukast. Both the GP and myself were so cross with this response, we can't put her back on Montelukast, she had a reaction to it!
The GP is now faxing the hospital demanding an urgent appointment for us with the consultant (we weren't meant to see her until the summer) so that we can hopefully get Evie's inhalers adjusted and get her off the Prednisolone!
I'm just so cross that we have to fight so hard for the right care for her! Does anyone else struggle with this with an under 5?