I am writing about something which happened 20 months ago but which is bothering me tonight. I am hoping by writing it down it will help - I know it's irrational to still be upset about it now.
In a nutshell, my son who was 4 at the time, coughed on every breath for three nights and three days and no one would help. He couldn't sleep at all because he had to cough on every breath. It was like torture and the doctors just didn't seem to care because his SATS were ok.
I phoned NHS direct who said he needed a nebuliser, I phoned out of hours who said he needed a nebuliser, but then I would get to out of hours and the doctor would refuse to give it. This happened three times.
My son was exhausted and by the final day he slipped into a depression and stopped trying to speak. It was only then that the GP took it seriously but it was on it's way out then and in any case they don't have a nebuliser there.
Ironically they were happy to give steroids and antibiotics which were next to useless, but refused to give the nebuliser.
I am so angry about it tonight and I don't know why. I knew he needed it, I wish they had just tried it.
Seeing what my son went through was kind of traumatic for me. I feel so awful that I couldn't help him.
He was so stoic for the first 24 hours then he started looking at me with tears rolling down his face for the second 24 hours. All I could do was stay with him. I did everything they told me to do and nothing helped.
I have titled this CVA because that's what I think he has as he never wheezes, but he hasn't had that diagnosis, just asthma in general.
He's 6 now and that was the second to last time we ever had any problems. Tonight his SATS are 94 so I was thinking of calling the doctor if he gets distressed and I suppose those three nights came back to me. I don't feel like out of hours are on my side.
I don't think there's anything I can do to make it feel better but if anyone has been through similar I'd appreciate it.