A bit of a random question but I am wondering if anyone can share any experiences/has any advice.
After a meltdown with my asthma nurse today, she asked me what I wanted (except a cure). This took me by surprise so didn't really know what to say however we had a long chat about trying to get a bit more stable so asthma doesn't necessarily interefere with everything/allow me to cut down reliever use and I now have an appointment to see my GP next week.
The problem I have is that everything they give me (high dose ICS, Spiriva etc.) helps but I am still symptomatic. Having had much more severe asthma in the past and then going back to just Symbicort SMART, makes me think that much more can be done but I think this needs more meds. I am don't really like suggesting things as I don't want to look over researched or just asking for meds (it's not like I want them but I really think they could help). Theophylline has been mentioned by a cons and my GP in the past but my last cons was reluctant to prescribe it because of the side effects. Xolair has also been mentioned by I have a very high IgE and anaphylaxis. I was discharged from the cons with a list of things to try (Intal, Atrovent etc) but nothing has really made a huge difference. My GP/asthma nurse admit that they are out of my depth but being referred has only been mentioned/not acted upon which is something else I need to discuss.
Has anyone got any suggestions for how to approach this?