I am feeling a little confused and overwhelmed at the moment, which is becoming more pronounced with the medical people around me. Don't get me wrong, in the acute situations they are amazing, its more the GP and asthma nurse etc at my surgery!
I am a brittle asthmatic, only diagnosed with this though about 6 months ago after a bad period of control, being on step 5 of treatment and still having quite frequent bad attacks which required me to get some sort of help. Since then, I have had multiple hospital admissions with asthma and am usually treated with IV stuff. I now leave getting help until I am unable to talk and really ill otherwise I may as well live in hospital.
The reason for this post is that I have always felt that I have had a pretty good relationship with the people at my GP practice, and there is one nurse that after an admission I will go to see for a bit of a debrief. This time this happened though I left really upset and confused. I went as I felt pretty overwhelmed by the severity of the last attack and the fact that after initial treatment, I had a really bad rebound attack and for the first time ever needed to be given aminophylline, which I had always thought would never happen to me! During this admission the respiratory registrar was very concerned with how ill I was and made contact with the anaesthetists and was very blunt about where things were heading if I didn't stabilise. I also had to have a lot of ABGs done to see what was happening and whether I was stabilising. A VERY overwhelming experience.
The nurse at my practice though seemed confused about the results of my ABGs, as my 4th one showed that I had a normal pO2 and a slightly low pCO2 and said about how I was clearly hyperventilating. This was what the registrar had wanted my ABGs to do as he said that he was now much less worried than before the aminophylline started when I had a normal pO2 (on 4L - was put onto 15L for a while) and a high pCO2. This was the pattern he would expect it to take.
I might be worried about nothing, but it feels to me that my GP practice is telling me that I am overreacting and becoming anxious about it. Far from it, I wait until I really have no choice but to get help with it and I am always ""told off"" for leaving it far too late.
The nurse at my practice said the other day that we need to get to the bottom of what is going off, which I agree with, something needs doing. BUT she said to me that she doesn't think that it is asthma as she has never known any asthmatic not wheeze. The thing is I DO wheeze, but when I get help, my lungs are always moving nothing and silent, so I don't have a wheeze. I wheeze a lot on a daily basis, but only when I am too well to do anything about it! I know a lot of people on the forum rarely wheeze so this confuses me!
Another thing is, I know that my GP practice has spoken to my consultant (I have an appointment in a couple of weeks) and it worries me that my consultant is going to grip onto the anxiety stuff and tell me that all my tests have come back fine and that it isn't asthma. I would rather that it wasn't asthma and that they could give me a tablet or something for a week and then everything go back to normal and not need to treat it anymore, but for some reason I don't think that this is going to happen! If it wasn't asthma, how come I respond so well to asthma treatment? Not only in the acute settings, but in the normal day to day stuff?
I am finding the whole thing really tough at the min, so sorry if you're finding my rantings frustrating/annoying!!
Has anyone else been in this situation? How did you get through it/cope with it?