My son was diagnosed asthmatic at 10 months after having a major asthma attack. He has been hospitalised numerous times since then (including HDU) and has tolerated all the tests, drips, nebs, needles, etc. He loved the ward rounds as he loved being the centre of attention as a toddler!
Recently though he is showing signs for becoming sad and worried about having a chronic illness. I guess I came to terms with the illness when he was younger, but as he is maturing and gaining insight, he is upset. He asks questions like ""I can die from asthma, can't I?"" and says ""it sucks being me"". I'd like to find a way to support him and help him to come to terms with this chronic illness.
I try to be positive, by telling him that we will do everything to control his asthma and not let his asthma control his life. He is very involved in his own meds and can take his inhalers and tablets independently. He also is very good at measuring his peak flow and understanding what is good and not good. I thought this would help him to feel more in control of his well-being and make him understand the importance of taking his meds as he gets older (and potentially less compliant). I am wondering if this hasn't been such a good idea.
I'd like some reassurance that I am doing the right thing! And if anyone has been through a similar time - what did you do to help?