Hiya - this is a bit of a rant/need to get my head around it/aaargh post, sorry if its boring!!
Little bit of a background...
I am a brittle asthmatic, and have been going through a pretty rough patch recently. In less than 3 weeks I have had 3 serious hospital admissions; 2 of them have put me in Resus, one then needing treatment in ICU (over reaction in my opinion!!) and another a stint in critical care. My attacks fortunately are often resolved well with the use of IV Hydrocortisone, Magnesium Sulphate, back to back nebs and constant oxygen. My ABGs have been pretty low when they have been done - 8 or sometimes lower even after nebs and O2. Lots of other visits too, almost admissions and times where I have refused any other treatment than nebs.
Sooo ... I have seen my consultant today, the last couple of times I have thought him to be really good and helpful. Today I left feeling a bit upset and overwhelmed by the whole thing. He spoke to me about my most recent admissions and how serious they were. But then went on to say that as he only has my discharge letters and not my actual notes (my GP has them and is very concerned about the severity of my admissions), which are not very detailed.
He then spoke about how he thought that I do have ""underlying brittle asthma"" but then spoke about how he thinks that anxiety is also an issue. He then spent the majority of the appointment talking about how he thinks that it is not that I am not having an asthma attack, but that anxiety is making it worse?! And that IF he had copies of my ABGs then this would not be an issue - I go to a different A&E to where my consultant is based.
He is also referring me for Physio incase its a breathing pattern problem which is causing worsening asthma?
He wants me to also drop from 40 pred to 30 tomorrow - the last time I went to 35 I had a bad attack and a serious admission.
I then spoke about how my life would be so much better if I could have a neb at home, and if they gave me clear boundaries of how far I could push it before calling for help. After what he said about anxiety being an issue it confused me when he said he doesn't want to give young asthmatics like me a home neb as its dangerous and my attacks are already potentially life threatening?! This felt a bit contradictory?
It probably doesn't seem like a huge deal. But I left feeling really upset and not understood My asthma is causing enough problems at the minute without my consultant going over to the dark side too...
Has anyone else experienced a good cons turned bad?