Hiya, hope everyone is coping ok with the weather and the pollen etc.
I posted an update from my consultant appointment last week, where I was given a new and surprising diagnosis.
My consultant has decided that due to the nature and severity of the asthma attacks I have I have severe and brittle asthma, the brittle doesn't fall nicely into either type 1 or 2 as I have aspects of both. He gave me very strict instructions of when I need to call for help and very bluntly explained the possible consequences of not doing so. But he was very good, reassuring and very approachable. I have my next appointment with him over the summer and he's booking an urgent appointment with his asthma nurse at the hospital (when she's back from holiday) to come up with a written action plan and info for paramedics and hospital when I need to be treated urgently. I am not CVA, but also not a great wheezer either.
I also don't always have the same type of attacks, sometimes I am fine and then within an hour (sometimes more, sometimes less) and then just crash, other times I feel it coming for a few days with the meds being less and less effective until it gets to the point where I need to go get help. Very frustrating.
The ""brittle"" diagnosis came as a total shock, and therefore I didn't go armed with a ton of questions I wanted to ask, so they are all going round in my head at the min, so thought I'd try and get other people's experiences and opinions on brittle asthma. I am 25 and it seemed like a bombshell diagnosis, am I overreacting?
Questions I wish I'd asked:
*Can brittle asthma ever be controlled?! On a crazy amount of medication, including 35mg pred (he eventually wants me to get to a maintenance dose of 20mg) and loads of other stuff and STILL getting symptoms daily - some of them severe.
*I am a teacher, what is the implications of the brittle diagnosis on my current and future job prospects?
*Can it ever get better, become unbrittle?
*What is the long term prognosis for this type of asthma?
*How can I avoid triggers? I am allergic to everything!!
*Can anything else be added on/done to control it?
And about a million other questions!! LOL
Just feeling very overwhelmed at the moment and feel out of my depth with this new diagnosis.
Thanks for reading.